Thought I would start with something different today! Yes, it takes two or three or more, whatever you have available to you. The point of this is that it will be a rarity that anyone is completely alone in this journey. Even if you don’t have a partner, or children or siblings there will beContinue reading “It takes two…”
Category Archives: Other people’s attitudes
To tell or not to tell that is the question!
One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work. Being a very private person, his take was “you don’t have to rush into telling people”. I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”
Parkies, life and grief
As with any other person, there is much more to my life than just the diagnosis of Parkinson’s. I carry with me a grief that no mother should have to face. The death of my oldest son, suddenly and far too soon at just short of his 39th birthday. One thing that I find comfortContinue reading “Parkies, life and grief”
Words are important
I know there will be changes to my body in the future. I think I am prepared for that. The thing that I am not looking forward to, is that one day my voice will change and my words both spoken and written may leave me. I have had some symptoms which apparently can beContinue reading “Words are important”
Accessible or not accessible… that is the question!
Well. There is a lot of talk about accessibility when it comes to people in the community with disabilities, whether they are temporary or permanent. For myself, I have been told – and try to believe – that my current state of disablement is a temporary condition which apparently will improve. I digress. As IContinue reading “Accessible or not accessible… that is the question!”
Pain is a difficult thing to describe
For what seems like forever, I have had significant pain originating from my back but felt mostly with pain down both legs but predominantly my left leg. I cannot stand beyond what seems like seconds, but maybe in reality is about two minutes. As someone who has a lot of pain in their life, thisContinue reading “Pain is a difficult thing to describe”
Asking for help… it isn’t easy!
As any person who has ever read this blog will know, I have the good fortune to be blessed with the most loving and supportive husband I could wish for. That said, it took me three goes to get a goodun’ and as they say it is definitely a case of ‘Third time lucky’! MyContinue reading “Asking for help… it isn’t easy!”
The wisdom of gazing into the future…
I have probably talked about this a bit previously in this Blog. As I have often said, I try not to think too much about the ‘end game’ or the future and what that might look like physically. Trying to remain in the present, in the ‘here and now’ isn’t always easy. There is thoughContinue reading “The wisdom of gazing into the future…”
Dependency and independence ‘acts of service’
At the moment, with my back injury affecting my legs, I can’t walk at the moment without a walker. It is difficult to accept that I need this currently. I am trying to have regular short walks with the walker so that I don’t stiffen up and affect my recovery. Everyone I speak to Physiotherapists,Continue reading “Dependency and independence ‘acts of service’”
A talk well worth listening to…
My husband and I went to a very interesting talk given by Bas Bloem last night. It was titled ‘Cautious Hope and Optimism in The Age of a Parkinson’s Pandemic’. He was a very engaging speaker and we both enjoyed hearing what he had to say. At the beginning I liked when he said thatContinue reading “A talk well worth listening to…”
My journey with Parkinsons 