I frequently read other blogger’s posts and it is interesting to see different perspectives and to consider how they gel with my own. I read with interest a post that talked about ‘Caregivers and Loved Ones’ as it spoke about changing roles. This interested me for a couple of reasons. One is the use ofContinue reading “Caregivers and ‘Loved Ones’ and tasks”
Category Archives: Getting on with life
‘You’re looking grumpy!’
I read with interest a post on the Facebook page that I follow for those affected by PD and those that support them. In the post the person was talking about their behaviours and how they may not always be fully aware of them. At times they say that their children had thought they were angryContinue reading “‘You’re looking grumpy!’”
A wee bit OCD perhaps – being ‘particular’ about things?
As I have gone through life, I have become more and more a creature of habit. Certain things need to be done a certain way, or it is just not right and it is positively jarring. One of the things that I find I can’t abide is the way a toilet roll is put on theContinue reading “A wee bit OCD perhaps – being ‘particular’ about things?”
Living our own truth
I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”
Looking for silver linings
I was visited today by a friend of mine, whom I have known for several years. We started talking about some of our previous relationships and how some of the negative aspects of those relationships still impact us today. Both of us have previously been in an abusive relationship and been on government assistance to helpContinue reading “Looking for silver linings”
Been for my WOF (Warrant of Fitness)
Today I had a catch-up with my Neurologist’s Parkinson Nurse and it was good to have a chance to meet face to face to talk about some of my latest issues. I told her about the shooting pains I am experiencing down my legs and it appears that it is unlikely to be anything toContinue reading “Been for my WOF (Warrant of Fitness)”
A dress rehearsal for Parkies?
I commented to my husband this morning that I feel like my body is attacking me. Not only am I recovering from pretty major knee surgery, but I have another issue plaguing me. I find that if I sit and rest for a bit after walking around, that as soon as I stand up I get electricContinue reading “A dress rehearsal for Parkies?”
New diagnosis for younger people with Parkies
I am now entering my fourth year of living with Parkinson’s. I am fortunate to have a very supportive husband and family and that I remain reasonably independent and continue to work. There are some unmet needs though, that need expression.At some point we are likely to have to face the fact that I cannot continue toContinue reading “New diagnosis for younger people with Parkies”
My needy knee…
It is now just on six weeks since I had my knee replacement surgery on 29/11/23. I am told that I am doing well by my husband, my surgeon and my physiotherapist. However, for me – as ever impatient to get on – it feels like slow process and that it is taking forever. This experience has certainlyContinue reading “My needy knee…”
To all you ‘carers’ out there…
Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”
My journey with Parkinsons 