Things are going well

This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”

Facing up to reality

Throughout this journey, I have tried to remain real and honest. That means for me that my Blog can sometimes be – if not negative – less positive than some of my posts. I have been in a room with other Parkies people and felt that my symptoms are minimal and under control by comparison.Continue reading “Facing up to reality”

What is ‘normal’?

I am a member of a Facebook page for people affected by Parkinson’s. The question was asked today, ‘what is your normal’? It made me think about how I have never liked the use of that term. After all, what is my normal, may be very different from everyone else’s version of normal and whatContinue reading “What is ‘normal’?”

Discussing the future

It is important to me, that I enjoy life here and now and don’t dwell on what might happen in the future too much. After all none of us have a crystal ball to predict what the future holds, with or without any kind of diagnosis. However, for me there was a conversation I feltContinue reading “Discussing the future”

Travel, memories and moments

I told my brothers as soon as I had the diagnosis.  As I said to my husband, for the next 10 years and more – I’m aiming for at least 20 – we are going to spend time with those we love, build beautiful memories and live life to the full!  We will travel –Continue reading “Travel, memories and moments”

To tell or not to tell that is the question!

One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work.  Being a very private person, his take was “you don’t have to rush into telling people”.  I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”