A Parkinson’s Facebook Page that I am on asked the question ‘what are you grateful for?’ One thing I love about that page is the sense of community and positivity that it gives us all. Sometimes, while we are working our way through life with a degenerative condition, it is all too easy to focusContinue reading “I am grateful…”
Author Archives: kiwipommysue
A life with purpose… what will I be remembered for?
I think I have always been someone who, from an early age wanted to help and support people. I have had a lots of ups and downs in life, both in relationships and with my health. I have had depression, I’ve recovered and I’ve headed towards depression again in this life. I am happy toContinue reading “A life with purpose… what will I be remembered for?”
A Baker’s cyst…
I have had enough of myself at the moment! My right leg is causing me constant pain and restricting my ability to walk. Just walking around the house is painful and almost beyond me right now, let alone trying to even think of going to the gym. It’s alright for my Physio or Doctor –Continue reading “A Baker’s cyst…”
We are the experts! Parkies People
In my last post, I talked about the value of being with others who have similar experience that we can connect to. I also spoke about a conference my husband and I attended in Rotorua a couple of years ago. It was shortly after I was diagnosed and while I had some hesitation about going,Continue reading “We are the experts! Parkies People”
Finding my tribe…
I often say that there is nothing like a shared experience to bring people together. I know when I was a very young first time Mum – at age 20 – that getting together with other Mums and sharing our experiences and things that worked for us, was really useful. You knew that others wereContinue reading “Finding my tribe…”
I’ve recovered my equilibrium… (big word for a Sunday!)
Well, the last post I did I was a bit of a Negative Nelly. Sorry to all you Nellies out there! Or rather a Sad Sack Sue! Sometimes it just takes having a bit of an offload to actually start to feel a bit better about life. Sure, Parkies is not the hand I wouldContinue reading “I’ve recovered my equilibrium… (big word for a Sunday!)”
I am so over being in pain…
I wish there was someone I could complain to and get a refund on my body!! Like when you purchase an item from a store and it is faulty. Take that thing back and get your money back! Right now, I’m feeling my body is not fit for purpose. Legs are for walking on surely?Continue reading “I am so over being in pain…”
Parkies makes me a better person and a better Social Worker!
During a discussion group this week, I was using my diagnosis as an example of something that I need to be mindful of in my work. I was asked, ‘Do you find it difficult working with people with similar conditions? Or is it helpful?’ I didn’t have to think about it too long at allContinue reading “Parkies makes me a better person and a better Social Worker!”
‘Shouldisms’ and Self-care
The use of language is a powerful thing. The words we use can create negative or positive thoughts and feelings. I have always hated the word ‘should’, to me it is heavily value laden with the expectations of others. We then take on board and often beat ourselves up for not achieving what they andContinue reading “‘Shouldisms’ and Self-care”
If I had a time machine…
Or, If I had a crystal ball…. It’s hard sometimes to find a title for my posts. Often there is a mad jumble of thoughts and emotions when I sit down to write and to make sense of it can be a challenge. I had my grandchildren for the weekend, and we have had aContinue reading “If I had a time machine…”
My journey with Parkinsons 