How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”
Author Archives: kiwipommysue
A hidden issue – how can I be seen?
I’ve written before in this blog about hidden disabilities and how challenging it can be to not only live with them, but for others to understand. I often use the analogy of a person in a wheelchair at the bottom of some steps. No reasonable person would expect them to be able to get upContinue reading “A hidden issue – how can I be seen?”
There are no experts in Parkinson’s – Oh, yes there are – A Podcast
As a follow on from the previous blog post, I thought I would add the podcast in case you might like to listen to it. I always say that we are the ones who are experts and I firmly believe that. No two Parkinson’s presentations are the same. Your Parkinson’s will be different from everybodyContinue reading “There are no experts in Parkinson’s – Oh, yes there are – A Podcast”
There are no experts in Parkinson’s – Oh, yes there are!
Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”
It takes a village – Growing with them as they grow
It takes a village they say to raise a child. Each age and stage brings with it new challenges and opportunities to learn from each other. I have six grandchildren, they are three boys and three girls, the girls living here in Christchurch and the younger family of boys in Wellington. The family of girlsContinue reading “It takes a village – Growing with them as they grow”
Acts of service – love in a fruitcake
I wrote a blog about this topic many years ago. It came out of a brief counselling session my now husband and I had right at the beginning of our trying to get to know and understand each other. What can I say? It’s a work in progress… Acts of service are the way someContinue reading “Acts of service – love in a fruitcake”
Tears for breakfast
Yesterday I woke up feeling out of sorts. I wasn’t aware that I was going to turn into a tearful mess. But I did! One minute I’m talking to my husband, the next I am in floods of tears. I know what is behind it, the uncertainty of how long I am going to haveContinue reading “Tears for breakfast”
Why I think I’m qualified to talk about Parkinson’s
I am the third person in the family to have Parkinsons. Both my Mum and Dad had Parkinsons and I supported them in their journeys. Now, I have Parkinsons and was Diagnosed on 15/12/20. In addition, I have 20 years of experience in working with people with various health issues, including health issues relevant toContinue reading “Why I think I’m qualified to talk about Parkinson’s”
Discussing the future – Podcast
The is an important topic and one which is never going to be easy. However, the way I wanted to handle it was to initiate the discussion early so that I could fully participate. My husband was reluctant to discuss at first as he felt it was far too early to do so. I originallyContinue reading “Discussing the future – Podcast”
Maybe I’ve been a bit harsh!
A few days ago I wrote a post about culling my Facebook friend list. After a discussion with someone whose opinion I value, I realised that maybe I had been a bit harsh. There may be many reasons why we don’t keep in contact with people and some of those reasons we don’t necessarily shareContinue reading “Maybe I’ve been a bit harsh!”
My journey with Parkinsons 