Diagnosis – What did they tell you at the time?

This afternoon I was reading a post on a Facebook page for people with Parkinson’s and those who care about them. In that post they asked the question “what information did you receive from your doctor the day you were diagnosed with Parkinson’s disease?” That is a very good question to ask and I amContinue reading “Diagnosis – What did they tell you at the time?”

Please and Thank you and assumptions

Like most people born in the 50’s, 60’s and perhaps the 70’s, manners were drummed into me from the earliest age. We were taught to respect our elders and those in authority and always, always, say please and thank you. If I stayed at someone’s house, I was to say, “Thank you for having me!”Continue reading “Please and Thank you and assumptions”

Voicing a problem…

In this blog, I have spoken about many aspects of my life with Parkinson’s and new things are cropping up all the time. Subtle changes in swallowing, maybe a memory that’s a bit worse and some other things so subtle it’s hard to put a finger on. I think I might notice a bit moreContinue reading “Voicing a problem…”

The times they are a changing

Yesterday, my husband and I took our three beautiful granddaughters out for lunch. The oldest (twins) have recently turned 16 and the youngest soon to turn 12. There have been some changes in their lives over the past few months and with NCEA and just living the life of a teenager, we haven’t seen thatContinue reading “The times they are a changing”

Sometimes being negative is a positive thing…

I was reading a post on a Facebook group that I follow and it has made me think. The person posting has obviously been struggling with this journey and expressing frustration perhaps because they have been reading all about how people are doing so well. People who say they are doing “PD Warrior” or otherContinue reading “Sometimes being negative is a positive thing…”

I’ve been neglecting my blog…

It is difficult for me to imagine not having my blog and my podcast as an avenue to process all that has happened for me and still happening. I have been diagnosed now for about 4.5 years, my anniversary being on 15/12 which will be five years. Some have said that focussing on my Parkinson’sContinue reading “I’ve been neglecting my blog…”

Podcast interviews anyone keen?

So, for those of you who are new to my efforts and for those of you who are not, I am reaching out to see if anyone can assist me with my podcast. One of the reasons I decided to add a podcast on to my blog, is that I wanted the ability to interviewContinue reading “Podcast interviews anyone keen?”

There are no experts in Parkinson’s – Oh, yes there are!

Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”

Perfect imperfection and Parkinsons

For those of us with a condition like Parkinson’s we know that there will be a gradual worsening as we go along. There are many facets to Parkinsons and every person experiencing it can be quite different in how the condition manifests itself. While there is no cure for Parkinsons – as yet – thereContinue reading “Perfect imperfection and Parkinsons”

Life is full of challenges…

I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”