I was reading a post on a Facebook group that I follow and it has made me think. The person posting has obviously been struggling with this journey and expressing frustration perhaps because they have been reading all about how people are doing so well. People who say they are doing “PD Warrior” or otherContinue reading “Sometimes being negative is a positive thing…”
Tag Archives: Parkinson's
I’ve been neglecting my blog…
It is difficult for me to imagine not having my blog and my podcast as an avenue to process all that has happened for me and still happening. I have been diagnosed now for about 4.5 years, my anniversary being on 15/12 which will be five years. Some have said that focussing on my Parkinson’sContinue reading “I’ve been neglecting my blog…”
Podcast interviews anyone keen?
So, for those of you who are new to my efforts and for those of you who are not, I am reaching out to see if anyone can assist me with my podcast. One of the reasons I decided to add a podcast on to my blog, is that I wanted the ability to interviewContinue reading “Podcast interviews anyone keen?”
There are no experts in Parkinson’s – Oh, yes there are!
Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”
Perfect imperfection and Parkinsons
For those of us with a condition like Parkinson’s we know that there will be a gradual worsening as we go along. There are many facets to Parkinsons and every person experiencing it can be quite different in how the condition manifests itself. While there is no cure for Parkinsons – as yet – thereContinue reading “Perfect imperfection and Parkinsons”
Life is full of challenges…
I have always been someone who has had a lot of health challenges in their life. From minor to major and everything in between, I seem to have more than my fair share at times. Of course, the main health condition – and the one that spawned this Blog – is Parkinson’s. But there areContinue reading “Life is full of challenges…”
My body is challenging me…
As if having Parkinson’s wasn’t enough, I have problems with my spine and legs. I spent a night in hospital because of the pain I have been experiencing. It feels like it came on suddenly and is a difficult thing to try and remember when it first started. It feels really unfair right now thatContinue reading “My body is challenging me…”
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
How are you doing?
For those of us that have a diagnosis of Parkinson’s, I hope that for the most part we are supported by our GP’s, our specialists and other health professionals we are involved with. We need to have our medications reviewed from time to time and ensure that as we progress we have all that weContinue reading “How are you doing?”
Responding to need
I have read many posts on a Facebook page that I belong to about how to get help for a family member with Parkinson’s. The first thing to do is make sure that the person with Parkinson’s or PWP goes to see their GP, discuss what the person’s challenges are and request an assessment toContinue reading “Responding to need”