It is unusual for me to notice some fluctuations in symptoms. However, today for the first time I can recall I feel quite Parkies today. We are currently in Akaroa, staying in a Motel for the night. I got up about 5am because I couldn’t get back to sleep. I also took my medication notContinue reading “Feeling a bit Parkies today”
Category Archives: Self learning and growth
Caregivers and ‘Loved Ones’ and tasks
I frequently read other blogger’s posts and it is interesting to see different perspectives and to consider how they gel with my own. I read with interest a post that talked about ‘Caregivers and Loved Ones’ as it spoke about changing roles. This interested me for a couple of reasons. One is the use ofContinue reading “Caregivers and ‘Loved Ones’ and tasks”
Finding the right help and information
I have a friend who has had some significant symptoms recently, with sharp pains in her head and at times she can’t get out of bed for days. She has been to her GP and is awaiting a scan to try to determine what is happening for her. She is waiting to see a NeurologistContinue reading “Finding the right help and information”
‘You’re looking grumpy!’
I read with interest a post on the Facebook page that I follow for those affected by PD and those that support them. In the post the person was talking about their behaviours and how they may not always be fully aware of them. At times they say that their children had thought they were angryContinue reading “‘You’re looking grumpy!’”
A wee bit OCD perhaps – being ‘particular’ about things?
As I have gone through life, I have become more and more a creature of habit. Certain things need to be done a certain way, or it is just not right and it is positively jarring. One of the things that I find I can’t abide is the way a toilet roll is put on theContinue reading “A wee bit OCD perhaps – being ‘particular’ about things?”
Living our own truth
I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”
Looking for silver linings
I was visited today by a friend of mine, whom I have known for several years. We started talking about some of our previous relationships and how some of the negative aspects of those relationships still impact us today. Both of us have previously been in an abusive relationship and been on government assistance to helpContinue reading “Looking for silver linings”
What is intimacy?
This can be a bit of a contentious and personal question. I think if you ask that question at different ages and stages you will get quite a different answer. It also depends on the relationships you have with the important people in your life that you love and trust. Twenty year old me would certainly haveContinue reading “What is intimacy?”
A dress rehearsal for Parkies?
I commented to my husband this morning that I feel like my body is attacking me. Not only am I recovering from pretty major knee surgery, but I have another issue plaguing me. I find that if I sit and rest for a bit after walking around, that as soon as I stand up I get electricContinue reading “A dress rehearsal for Parkies?”
New diagnosis for younger people with Parkies
I am now entering my fourth year of living with Parkinson’s. I am fortunate to have a very supportive husband and family and that I remain reasonably independent and continue to work. There are some unmet needs though, that need expression.At some point we are likely to have to face the fact that I cannot continue toContinue reading “New diagnosis for younger people with Parkies”
My journey with Parkinsons 