Terrible typo…

I was just re-reading my previous post about my checkup with the surgeon who operated on my knee. For some reason, I had put that I was recovering from ‘a significant car accident’. No idea where that came from, but it illustrates that I must be very careful in proof reading before I publish inContinue reading “Terrible typo…”

Caregivers and ‘Loved Ones’ and tasks

I frequently read other blogger’s posts and it is interesting to see different perspectives and to consider how they gel with my own. I read with interest a post that talked about ‘Caregivers and Loved Ones’ as it spoke about changing roles. This interested me for a couple of reasons. One is the use ofContinue reading “Caregivers and ‘Loved Ones’ and tasks”

‘You’re looking grumpy!’

I read with interest a post on the Facebook page that I follow for those affected by PD and those that support them. In the post the person was talking about their behaviours and how they may not always be fully aware of them. At times they say that their children had thought they were angryContinue reading “‘You’re looking grumpy!’”

A wee bit OCD perhaps – being ‘particular’ about things?

As I have gone through life, I have become more and more a creature of habit. Certain things need to be done a certain way, or it is just not right and it is positively jarring. One of the things that I find I can’t abide is the way a toilet roll is put on theContinue reading “A wee bit OCD perhaps – being ‘particular’ about things?”

Living our own truth

I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”

Looking for silver linings

I was visited today by a friend of mine, whom I have known for several years. We started talking about some of our previous relationships and how some of the negative aspects of those relationships still impact us today. Both of us have previously been in an abusive relationship and been on government assistance to helpContinue reading “Looking for silver linings”

New diagnosis for younger people with Parkies

I am now entering my fourth year of living with Parkinson’s. I am fortunate to have a very supportive husband and family and that I remain reasonably independent and continue to work. There are some unmet needs though, that need expression.At some point we are likely to have to face the fact that I cannot continue toContinue reading “New diagnosis for younger people with Parkies”

To all you ‘carers’ out there…

Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”

Carers views vs PWP

This journey of ours that we travel on with Parkinson’s is a challenging one. There is no denying that. If we have family who support us or partners that live with us, it is a joint experience and each affects the other as we learn what Parkinson’s means for us all. I was reading a post inContinue reading “Carers views vs PWP”

Learning from the ‘experts’ on Parkinson’s

This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”