Tonight I attended the first monthly support group for 2024. We are a bunch of early stage people with Parkinson’s and all under 65. Partners are welcome too and it is nice to see them tapping into the group as a support. We talk about many things at this group and while it is a relaxed typeContinue reading “What is the smart option for you?”
Category Archives: Looking to the future
To all you ‘carers’ out there…
Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”
Choices
Reading a post from the Parkinson’s Facebook page that I follow, there was a quote from my hero in Parkinson’s, Michael J Fox. It goes as follows: I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.Continue reading “Choices”
Carers views vs PWP
This journey of ours that we travel on with Parkinson’s is a challenging one. There is no denying that. If we have family who support us or partners that live with us, it is a joint experience and each affects the other as we learn what Parkinson’s means for us all. I was reading a post inContinue reading “Carers views vs PWP”
Happy 3rd Anniversary…
I have just realised today that I missed two Anniversary’s this month. The first of which is the Anniversary of my diagnosis of Parkinson’s on 15/12/20. The second a happier Anniversary on 21/12/20 when we moved into our beautiful home in Kaiapoi. As I write this I am at home and in recovery mode from my kneeContinue reading “Happy 3rd Anniversary…”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
Parkinson’s fear and shame…
I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”
Parkies and anaesthetic
I am now in the countdown to my knee replacement surgery, having finished work and I have just 11 days till my surgery. My boss was very understanding to give me the whole of the week before my surgery week on leave. This is a great opportunity to isolate myself as much as possible fromContinue reading “Parkies and anaesthetic”
Lost for words…
My words are important to me. I have always had a love of words. Of poetry. Of poets and for me I have also always loved William Shakespeare. I like many types of poetry, especially those that tell a story like Pam Ayres’ work. My particular favourite – which I always wanted to read toContinue reading “Lost for words…”
Not feeling particularly good right now
There are two dates in my life that I very much struggle with these days. One is 4/10 – the date on which my eldest son Adam passed away in 2020. The other is 3/11 – the date of his birthday. He would have been 42 years of age this Friday. I am finding itContinue reading “Not feeling particularly good right now”
My journey with Parkinsons 