I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”
Category Archives: Hard times
Ask for help when it’s needed
In my last post I talked about the pain I experienced overnight that kept me awake and basically meant that I had to get up at 5am as I couldn’t sleep with the pain. I have had a few pain issues at night from time to time but haven’t really thought too much about itContinue reading “Ask for help when it’s needed”
Does Parkies accentuate existing anxieties?
As any of you who follow this Blog will know, I have stated that I have always been a ‘words person’ rather than a ‘numbers person’. I often say that there is a good reason I am a Social Worker and not an Accountant and that is because I have never got on with numbers.Continue reading “Does Parkies accentuate existing anxieties?”
Not feeling particularly good right now
There are two dates in my life that I very much struggle with these days. One is 4/10 – the date on which my eldest son Adam passed away in 2020. The other is 3/11 – the date of his birthday. He would have been 42 years of age this Friday. I am finding itContinue reading “Not feeling particularly good right now”
Disability Discrimination and ignorance…
I am a member of a very supportive Facebook Page for people with Parkinson’s in Australia and New Zealand. It is for the most part a positive page and a great forum for discussion about the things that affect us Parkies folk! I read with concern a post by a member of the group, whoContinue reading “Disability Discrimination and ignorance…”
Don’t give up the struggle…. let people know you need help!
This can be a tough old life with Parkies. Not just for the Parkies person themselves but also for their partner and often for their wider family/whanau group too. As someone who fiercely holds onto their independence, it is sometimes difficult to put my hand up and say that I am struggling. However, I haveContinue reading “Don’t give up the struggle…. let people know you need help!”
Feeling… Fragile, Frustrated and Fearful!
With each day that passes a little bit more of my usual resilient self seems to be steadily chipped away. Being in constant pain, just makes me more emotional in so many ways. Now, after working out that I can’t in all likelihood get an operation to replace my painful knee, we are facing havingContinue reading “Feeling… Fragile, Frustrated and Fearful!”
Precious memories of a precious son….
The year 2020 was one of the most difficult years of our lives. We had COVID to deal with, lock downs and my diagnosis on 15/12/20. The most significant and difficult thing that happened that year though was that my oldest son Adam passed away unexpectedly in his sleep from an undiagnosed heart condition. TheContinue reading “Precious memories of a precious son….”
Let’s talk about the future…
There are many things that as adults we need to consider at some point in the future. Especially, as we age it is important that those that love and support us know what our wishes are. This is not an easy thing to think about or talk about, but can be very important not justContinue reading “Let’s talk about the future…”
Taking control…
I have had a couple of weeks of difficult challenges in my life, relating not only to my health, but also to my work environment. Working in a challenging and stressful role can sometimes become overwhelming. So too, with my health. There are many things that I cannot control about my health. Much as IContinue reading “Taking control…”
My journey with Parkinsons 