Reading a post from the Parkinson’s Facebook page that I follow, there was a quote from my hero in Parkinson’s, Michael J Fox. It goes as follows: I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.Continue reading “Choices”
Category Archives: Getting on with life
Happy 3rd Anniversary…
I have just realised today that I missed two Anniversary’s this month. The first of which is the Anniversary of my diagnosis of Parkinson’s on 15/12/20. The second a happier Anniversary on 21/12/20 when we moved into our beautiful home in Kaiapoi. As I write this I am at home and in recovery mode from my kneeContinue reading “Happy 3rd Anniversary…”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
I have a confession to make…
It has been some time since I have really been able to do my Parkinson’s exercises due to my knee issues. Many of the exercises were such that my knee definitely hampered and/or prevented me being able to do them. That is my excuse for that side of my addressing my Parkinson’s through exercise. I have recentlyContinue reading “I have a confession to make…”
Have I become invisible?
There is nothing quite like experiencing something for yourself first-hand to open your eyes to the challenges of having a disability. Post operatively I am doing well and currently mobilising with two crutches. I will admit that my mobilising is slow, but that’s just the way it is for a while till my recovery continues. Yesterday,Continue reading “Have I become invisible?”
Parkinson’s fear and shame…
I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”
Learning my limits …
Well, it is just over a week since I had my knee replacement surgery. I was told that it was one of the biggest and most painful operations you could have. However, I seem to have been managing well and the pain has not seemed too bad. The problem is, I think, that you canContinue reading “Learning my limits …”
What age is elderly?
I remember through the years hearing people in their 60’s, 70’s and even 80’s saying that they don’t feel as old as they are. That in their hearts they still feel the same as when they were younger. As a younger person that seemed hard to understand when standing – or sitting – in frontContinue reading “What age is elderly?”
Parkies and anaesthetic
I am now in the countdown to my knee replacement surgery, having finished work and I have just 11 days till my surgery. My boss was very understanding to give me the whole of the week before my surgery week on leave. This is a great opportunity to isolate myself as much as possible fromContinue reading “Parkies and anaesthetic”
Not feeling particularly good right now
There are two dates in my life that I very much struggle with these days. One is 4/10 – the date on which my eldest son Adam passed away in 2020. The other is 3/11 – the date of his birthday. He would have been 42 years of age this Friday. I am finding itContinue reading “Not feeling particularly good right now”
My journey with Parkinsons 