I was reading a post on the Parkinson’s Facebook page that I follow, and it had some thoughts that are worth sharing. The post was relaying an incident that happened to an elderly person in their neighbourhood that had a fall and activated their medical alarm. This was unrelated to Parkinson’s by the way. TheContinue reading “Safety and Security”
Author Archives: kiwipommysue
Sometimes I’d rather limp…
Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
The importance of Social Support systems…. and identity
I was reading a Blog from another person with Parkinson’s ‘A soft voice in a noisy world’ and he made this comment, which resonates with me. “If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team.” This is so true and I oftenContinue reading “The importance of Social Support systems…. and identity”
Where do you go for help?
I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”
Be proud of yourself
Flicking through Facebook Reels and I found this clip. This kid is amazing and I totally agree with what he says. This spoke to me and I wanted to share it with you all. All too often in this journey we might be tempted to focus on the things that are too hard. The thingsContinue reading “Be proud of yourself”
The words in my head
My words come to me My words come to me, at times they’re unbidden From the depths of my brain, where they’ve been hidden I can be busy at work or driving my car They come to me often, wherever we are The words that I write can move me to tears As I tryContinue reading “The words in my head”
Parkies, Positivity and Purpose…
I was out with my husband today having a coffee in a local cafe. We were talking about a new project that I am working on. He turned to me and said, ‘You know, since you’ve been diagnosed with Parkinson’s you seem to have more positivity and purpose in life.’ I had to agree heContinue reading “Parkies, Positivity and Purpose…”
The gift of poetry
I suppose everyone has some kind of talent within them, even if we don’t always recognise it. My Mum was, I think, a very talented artist and I have quite a few of her paintings on my walls. I’m afraid that particular talent has definitely skipped this generation. At least it definitely seems to haveContinue reading “The gift of poetry”
Being available and being mindful of boundaries
I started this Blog soon after I was diagnosed with Parkinson’s on 15/12/2020. It had been a difficult year with lockdown, a personal tragedy and then the diagnosis. I needed to process what was happening to me and also wanted to try to help others through sharing my experiences along the way. My thoughts andContinue reading “Being available and being mindful of boundaries”
Accident vs Medical Event…
It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”