I read with interest a post on the Facebook page that I follow from one of the administrators. The writer was commenting on the unique experiences of this condition that we all have. She had put a lot of thought into this post and went on to say that when posting she always writes about what worksContinue reading “Living our own truth”
Category Archives: Self learning and growth
Looking for silver linings
I was visited today by a friend of mine, whom I have known for several years. We started talking about some of our previous relationships and how some of the negative aspects of those relationships still impact us today. Both of us have previously been in an abusive relationship and been on government assistance to helpContinue reading “Looking for silver linings”
What is intimacy?
This can be a bit of a contentious and personal question. I think if you ask that question at different ages and stages you will get quite a different answer. It also depends on the relationships you have with the important people in your life that you love and trust. Twenty year old me would certainly haveContinue reading “What is intimacy?”
A dress rehearsal for Parkies?
I commented to my husband this morning that I feel like my body is attacking me. Not only am I recovering from pretty major knee surgery, but I have another issue plaguing me. I find that if I sit and rest for a bit after walking around, that as soon as I stand up I get electricContinue reading “A dress rehearsal for Parkies?”
New diagnosis for younger people with Parkies
I am now entering my fourth year of living with Parkinson’s. I am fortunate to have a very supportive husband and family and that I remain reasonably independent and continue to work. There are some unmet needs though, that need expression.At some point we are likely to have to face the fact that I cannot continue toContinue reading “New diagnosis for younger people with Parkies”
My needy knee…
It is now just on six weeks since I had my knee replacement surgery on 29/11/23. I am told that I am doing well by my husband, my surgeon and my physiotherapist. However, for me – as ever impatient to get on – it feels like slow process and that it is taking forever. This experience has certainlyContinue reading “My needy knee…”
To all you ‘carers’ out there…
Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”
Choices
Reading a post from the Parkinson’s Facebook page that I follow, there was a quote from my hero in Parkinson’s, Michael J Fox. It goes as follows: I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.Continue reading “Choices”
Carers views vs PWP
This journey of ours that we travel on with Parkinson’s is a challenging one. There is no denying that. If we have family who support us or partners that live with us, it is a joint experience and each affects the other as we learn what Parkinson’s means for us all. I was reading a post inContinue reading “Carers views vs PWP”
Happy 3rd Anniversary…
I have just realised today that I missed two Anniversary’s this month. The first of which is the Anniversary of my diagnosis of Parkinson’s on 15/12/20. The second a happier Anniversary on 21/12/20 when we moved into our beautiful home in Kaiapoi. As I write this I am at home and in recovery mode from my kneeContinue reading “Happy 3rd Anniversary…”
My journey with Parkinsons 