Those of you that follow my Blog will have noticed I have posted some of my poetry recently. My husband – and biggest fan – has often said that I should publish a book of my poetry. So, one day after one of these conversations recently, I contacted a publisher to enquire how to goContinue reading “Poetry to order?”
Category Archives: self-care
My Story… Our Story
Today, I was telling someone about my story. My journey with Parkinson’s. It is something of a challenge to talk about some of the early days with this condition and how I felt back then. At times the emotion of it all crept into my voice, but that is the reality of this condition. ItContinue reading “My Story… Our Story”
First day with my new gym programme…
Today was the day I started my new gym programme. I also ‘road tested’ some new tights and a t-shirt I bought especially for the gym. Firstly, the gym programme. The programme is quite comprehensive and is a mixture of cardio, strength and balance exercises. Exercises to help me improve my core strength and fitness.Continue reading “First day with my new gym programme…”
Find an outlet… self care
Tonight I posted a silly poem that I wrote several years ago following a trip to the local swimming pool. It has absolutely nothing to do with Parkinson’s, but just something light-hearted I thought I would share. If it makes someone smile, when maybe they are not having the best day then that would makeContinue reading “Find an outlet… self care”
Trying not to focus on ‘the end game’
I saw this posted on a Facebook page this morning for people with Parkinson’s and those that support them. It felt raw and very sad for that person to post this note to his or her Parkinson’s community. As someone also with the diagnosis, I absolutely get what they are saying. How could I not?Continue reading “Trying not to focus on ‘the end game’”
A sense of unreality
I am regularly plagued by a sense of unreality. That I don’t really have Parkinson’s. That any symptoms I might have can be explained away by overwork, tiredness, age, anything but Parkinson’s. My symptoms are pretty mild. I can walk without shuffling. My balance is pretty good. My reduction in energy levels explained away byContinue reading “A sense of unreality”
Finding – and training – a new GP
For the last at least 10-15 years I have had the same GP and so has my husband. He has seen me through diagnosis of depression (many years ago), arthritis (and operations to replace finger joints for this), a Hiatus Hernia, Esophageal Dysmotility (swallowing issues) and most recently of course, Parkinson’s. Sometimes, rightly or wrongly,Continue reading “Finding – and training – a new GP”
Knowing (and accepting) when you need help!
I have always prided myself on my independence and have been loathe to accept help unless I really need it. In this latest chapter of my life journey, now more than ever I need to be more open to accepting help. As mentioned in my last post, I had a fall on 30/12 and injuredContinue reading “Knowing (and accepting) when you need help!”
Being Brave
I have been described by colleagues as being ‘brave’ but what does that mean to me? To me being brave is getting up every morning and doing my job, but it can also be waking up in the morning and saying ‘today I can’t go to work, I need a break and time out toContinue reading “Being Brave”
Peer Support
I have worked in a number of jobs where there have been support groups available for people with certain health conditions in common. These groups can be invaluable as people often have similar shared experiences and knowledge of what has – or hasn’t – helped for them. It reminds me of when I was aContinue reading “Peer Support”
My journey with Parkinsons 