Neurology check-up

Today I had the appointment I have been waiting for, for literally years. We finally got in to see my Neurologist. My husband and I were sure that we had not seen him since the day of my diagnosis. However, to our surprise he produced a letter to our GP outlining a meeting we hadContinue reading “Neurology check-up”

Focussing on my deficits…

Anyone that really knows me, knows that I have had a number of health challenges over the years. With those health challenges, they are largely things that won’t go away. Most of them involve pain. Arthritis, bursitis, hernia, Parkinson’s and probably more as well. The only way I have managed over the years with theContinue reading “Focussing on my deficits…”

Fighting for my rights – being my own advocate!

I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”

Let’s get a ‘wee’ bit personal…

Even when you are a bit of an open book, as I try to be in this blog, there are some things that are more difficult to talk about. I find it interesting too – as a side note – that when I sit in front of a doctor – others of you may identifyContinue reading “Let’s get a ‘wee’ bit personal…”

Love and loss

Love is a beautiful, wonderful thing. But often with love there is ultimately loss. Whether it is a pet, a sibling, another family member, or a good friend. If you take the risk of loving someone you ultimately have to face the fact that you may lose them. We are all facing the loss ofContinue reading “Love and loss”

Support Groups… we all need different things!

Tonight, my husband and I attended the monthly support group that we have at a local bar. We have been going for a while now and it is nice to know that it is a safe group to talk about our diagnosis and other things in our lives. Many of the group are still working,Continue reading “Support Groups… we all need different things!”

Inside I’m smiling!

I was walking along with my husband during the weekend one day and a woman was coming towards us. I hadn’t been paying much attention to her, when as she approached us, she said, ‘Such a grumpy face for such a lovely day. Cheer up!’ As I said to my husband, ‘maybe it’s just theContinue reading “Inside I’m smiling!”

It’s a good life, in a lovely community!

I have had a busy weekend so far. So busy, I can’t really remember what I did yesterday! Today I went and played bowls for about the fourth time and I had a really good time. As happened last weekend, I had some very good bowls and a couple of really terrible ones. At leastContinue reading “It’s a good life, in a lovely community!”

Don’t wait till you retire…

I was having a chat to a friend of mine today and the subject of retirement came up. Another friend joined in and we had a good discussion about how we all know people who have worked hard all their lives and who had plans for travelling once retired. All too often the dream ofContinue reading “Don’t wait till you retire…”

For my friends… I know it was hard for you to say!

My friends had the difficult job of telling me some honest truths about my symptoms, which unfortunately I didn’t realise had become noticeable… So, I wrote them a poem. I cruise through life so slowly and try to do my bestI’m grateful for my family, for I am truly blessedAlthough I do have Parkies, IContinue reading “For my friends… I know it was hard for you to say!”