A world of pain and uncertainty

How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”

There are no experts in Parkinson’s – Oh, yes there are!

Let’s start this post with a little exercise. Go and look in the nearest mirror and what do you see? Do you see your tired eyes or your hair that needs cutting because you haven’t had time. Do you see all that you see as defects and that is maybe all you are accustomed toContinue reading “There are no experts in Parkinson’s – Oh, yes there are!”

Friends to Family, Family to Friends

When I was growing up, there were people in our lives who we called Auntie or Uncle and we always thought of them as that. Several years passed before I remember having a conversation with my Mum and I asked whose side of the family this Auntie and Uncle came from. Mum then told meContinue reading “Friends to Family, Family to Friends”

Tap, tap, tapping away…

Every now and again, I check in with myself and try to analyze whether there are any new symptoms or increase in symptoms already present. At the moment, I think I am still functioning reasonably well in most areas, but there have been a few things that I have noticed. Those are the main thingsContinue reading “Tap, tap, tapping away…”

Perfect imperfection and Parkinsons – Podcast Episode 18

Some may strive for perfection, but for me, that is aiming too high. I try to be the best that I can be in the moment. My best can change minute to minute, hour by hour or day by day. What is important is to be kind to ourselves and not put pressure on ourselvesContinue reading “Perfect imperfection and Parkinsons – Podcast Episode 18”

What happens after??

Many years ago I worked as a Social Worker in the community with people with dementia and their partners/husbands/wives and other family members who needed support. There were groups available for people in the early stages of dementia, support groups for family members and volunteers to help support the carers and people with dementia. AContinue reading “What happens after??”

I miss being me…

You might think that is a bit of a strange thing to say and it probably is. The me that I miss, is the me that is independent and does her own thing. The me that spur of the moment, will jump in her car and go look at Op Shops or go look aroundContinue reading “I miss being me…”

‘Loved ones’ and those we miss at Christmas…

I have always disliked the term ‘loved ones’ ever since I started working as a Social Worker. The term to me makes a whole world of assumptions about the relationships that surround – and also seemingly support – the people we work with. Even in our own personal world, all the training in the worldContinue reading “‘Loved ones’ and those we miss at Christmas…”

I should have left well enough alone… Podcast perils!

Some of you may have noticed that I have started to add Podcasts to my blog. These have been made from start to finish, wholly and solely by me, with no technical assistance whatsoever from anyone other than Youtube vids! So, I decided to take out the music intro and outro on my Podcasts andContinue reading “I should have left well enough alone… Podcast perils!”