Before I get into this post, let me say that I have a degree of reluctance to label those that support us as ‘carers’. To me, this takes away from the person’s identity as a husband, wife, partner or other family member who cares about us, but not necessarily identifies with the role of ‘carer’. IContinue reading “To all you ‘carers’ out there…”
Author Archives: kiwipommysue
Choices
Reading a post from the Parkinson’s Facebook page that I follow, there was a quote from my hero in Parkinson’s, Michael J Fox. It goes as follows: I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.Continue reading “Choices”
Carers views vs PWP
This journey of ours that we travel on with Parkinson’s is a challenging one. There is no denying that. If we have family who support us or partners that live with us, it is a joint experience and each affects the other as we learn what Parkinson’s means for us all. I was reading a post inContinue reading “Carers views vs PWP”
Happy 3rd Anniversary…
I have just realised today that I missed two Anniversary’s this month. The first of which is the Anniversary of my diagnosis of Parkinson’s on 15/12/20. The second a happier Anniversary on 21/12/20 when we moved into our beautiful home in Kaiapoi. As I write this I am at home and in recovery mode from my kneeContinue reading “Happy 3rd Anniversary…”
Learning from the ‘experts’ on Parkinson’s
This journey that we find ourselves on is one in which we are constantly learning. Constantly seeking the knowledge to understand this condition, what it means for each of us and for the people who are in supporting roles in our lives. When I say the word ‘expert’ many would find themselves thinking about those professionsContinue reading “Learning from the ‘experts’ on Parkinson’s”
I have a confession to make…
It has been some time since I have really been able to do my Parkinson’s exercises due to my knee issues. Many of the exercises were such that my knee definitely hampered and/or prevented me being able to do them. That is my excuse for that side of my addressing my Parkinson’s through exercise. I have recentlyContinue reading “I have a confession to make…”
Have I become invisible?
There is nothing quite like experiencing something for yourself first-hand to open your eyes to the challenges of having a disability. Post operatively I am doing well and currently mobilising with two crutches. I will admit that my mobilising is slow, but that’s just the way it is for a while till my recovery continues. Yesterday,Continue reading “Have I become invisible?”
Parkinson’s fear and shame…
I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”
Learning my limits …
Well, it is just over a week since I had my knee replacement surgery. I was told that it was one of the biggest and most painful operations you could have. However, I seem to have been managing well and the pain has not seemed too bad. The problem is, I think, that you canContinue reading “Learning my limits …”
Rehab – now I get it!
After having my operation on Wednesday I have stayed on the Ward for three nights. From the day after surgery I was told to get up and moving. I was also told to try and balance getting my body moving again and taking rests when needed. My time in hospital has brought that theory intoContinue reading “Rehab – now I get it!”
My journey with Parkinsons 