As people with complex health conditions and also for those that support us, it can be easy to let the ‘professionals’ call the shots when it comes to decisions. They can be decisions large or small, but perhaps if we get into a cycle of always agreeing with these professionals without question, we may alsoContinue reading “Be your own best advocate always…”
Tag Archives: advocacy
There are no experts in Parkinson’s – Oh, yes there are – A Podcast
As a follow on from the previous blog post, I thought I would add the podcast in case you might like to listen to it. I always say that we are the ones who are experts and I firmly believe that. No two Parkinson’s presentations are the same. Your Parkinson’s will be different from everybodyContinue reading “There are no experts in Parkinson’s – Oh, yes there are – A Podcast”
Fighting for my rights – being my own advocate!
I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
Why are doctors reluctant to refer?
I met with someone recently who I know and who I was unaware has also recently been diagnosed with Parkies. They are in the early stages – just six weeks ago – and very much going through the ‘Grief and Shock’ stage. Their story struck a chord for me for many reasons. I remember theContinue reading “Why are doctors reluctant to refer?”
My journey with Parkinsons 