It’s been a busy time on holiday in the UK. I have said more than once that I will need a holiday after this holiday! We are packing in lots of adventures, both big and small and I am finding that I am really tired, really quickly it seems. I have worried out loud toContinue reading “So tired, so very tired…”
Category Archives: Symptoms
Time for a check in…
We have been staying in Goathland a beautiful village in the beautiful North Yorkshire Moors. We arrived here on Sunday 4 June and we leave on Sunday 11 June to go visit friends for a few days. Unfortunately, we started our week in the Yorkshire Moors with a car crash. Luckily I was the onlyContinue reading “Time for a check in…”
Newly diagnosed and stages….
I was reading a post on Facebook regarding a woman whose husband had just been diagnosed with PD at age 61. I was interested to read that he was assessed by a Neurologist as being at ‘stage 2’. I wonder what that even means? What value does labelling stages have? Is this helpful I wonder?Continue reading “Newly diagnosed and stages….”
Am I anxious?
Starting a new part of our holiday today with a train trip from Leicester to Preston. Tomorrow we pick up a canal boat and have six days on the Lancaster canal just the two of us. On the journey here, we were making our way through the crowds at Preston railway station and I lookedContinue reading “Am I anxious?”
Taking Parkies on holiday…
It seems like a long time ago we started planning a trip to the UK to see family and friends. On 3 May 2023, after a few days in Singapore, we landed in England for a nine week holiday. This is the first time we have been to the UK since my diagnosis. Not onlyContinue reading “Taking Parkies on holiday…”
Sometimes I’d rather limp…
Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
Where do you go for help?
I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”
A Baker’s cyst…
I have had enough of myself at the moment! My right leg is causing me constant pain and restricting my ability to walk. Just walking around the house is painful and almost beyond me right now, let alone trying to even think of going to the gym. It’s alright for my Physio or Doctor –Continue reading “A Baker’s cyst…”
I am so over being in pain…
I wish there was someone I could complain to and get a refund on my body!! Like when you purchase an item from a store and it is faulty. Take that thing back and get your money back! Right now, I’m feeling my body is not fit for purpose. Legs are for walking on surely?Continue reading “I am so over being in pain…”
What’s the worst thing that could happen?
When you look into Parkinson’s on ‘Dr Google’ there are so many ways that this condition can affect us. It is mind boggling how many things can happen. There is pain, there are tremors, mobility and balance issues and of course cognitive effects. Of all the things that come with it, there is one thingContinue reading “What’s the worst thing that could happen?”
My journey with Parkinsons 