I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”
Category Archives: self-care
Let’s get a ‘wee’ bit personal…
Even when you are a bit of an open book, as I try to be in this blog, there are some things that are more difficult to talk about. I find it interesting too – as a side note – that when I sit in front of a doctor – others of you may identifyContinue reading “Let’s get a ‘wee’ bit personal…”
Off my game… does that mean?
So today I went to play bowls as I have been doing for a few months now. Tuesdays and Saturdays and it’s a great way to get exercise and socialise with others and have a good afternoon out. It is interesting to note that on Tuesday when I played I had two really good games.Continue reading “Off my game… does that mean?”
Substitutes, swaps and changes
I was thinking today about how we all have our own way of doing things, particularly when it comes to cooking a meal or baking. From my experience in my own family, there are those that have to follow a recipe to the letter and if they don’t have all the ingredients then they eitherContinue reading “Substitutes, swaps and changes”
Is it tiredness or something more…
We are currently in Wellington with soon and daughter in law and their three busy boys. I got up at 5am as I couldn’t get back to sleep. Throughout the day I noticed that I had trouble finding words and some big pauses while I tried to find the words. Did I detect a look,Continue reading “Is it tiredness or something more…”
Be your own best advocate…
For years I worked as a Social Worker and I often had to advocate for my patients and their families in various circumstances. When people find themselves needing significant health support and hospitalisation, they can feel that they have very little choice. It has always been important in my eyes to advocate for the choicesContinue reading “Be your own best advocate…”
Being the me I want to be…
I have had a wonderful day today, doing things that fill my cup and rejuvenate me. This morning I went to a Parkinson’s exercise group which I have been going to now for maybe three weeks. Then home for a quick sandwich and a change of clothes and then loaded the bowling kit in theContinue reading “Being the me I want to be…”
I’m loving my new life…
Just waiting for dinner to cook and I suddenly thought to myself, “I love my new life!” It just popped into my head randomly. My new life of course is my now retired life and I am finding being retired very positive. There are lots of things I like about it, but one thing thatContinue reading “I’m loving my new life…”
The mysteries of memory…
Working with a compromised brain is always going to be a challenge and one that changes how we think and process information. Even tasks that might have required very little thought and effort may have at least facets of them which we may need assistance with. An example of this is my hobby of makingContinue reading “The mysteries of memory…”
How are you doing?
For those of us that have a diagnosis of Parkinson’s, I hope that for the most part we are supported by our GP’s, our specialists and other health professionals we are involved with. We need to have our medications reviewed from time to time and ensure that as we progress we have all that weContinue reading “How are you doing?”
My journey with Parkinsons 