From the moment I heard the fateful words proclaiming that I now had to share my life with Parkies, I thought it would take over my life. For my life to be that of a Parkies “sufferer” seemed the likely outcome. Then, something interesting happened. I suppose it could be the Social Worker in meContinue reading “How do you ignore such a pest as Parkies?”
Category Archives: medications
Be your own best advocate always…
As people with complex health conditions and also for those that support us, it can be easy to let the ‘professionals’ call the shots when it comes to decisions. They can be decisions large or small, but perhaps if we get into a cycle of always agreeing with these professionals without question, we may alsoContinue reading “Be your own best advocate always…”
Am I an anxious person? She asks anxiously….
Today I went to see the specialist Parkinson’s Nurse that works with my Neurologist. I had requested to see her, as I had been noticing a number of things that made me think that I have progressed – or is it regressed – with my Parkinson’s. We talked about swallowing problems, excess saliva and theContinue reading “Am I an anxious person? She asks anxiously….”
Comorbidities Confuse Cause or cause confusion!
When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”
How do you describe a feeling?
I was talking to my husband yesterday and asked him this question. “Have you ever had that feeling when you hear something pleasurable or see something pleasurable and you get a sort of tingling sensation?” He said, “No, but I have songs that I hear that bring back nice memories for me!” I then wentContinue reading “How do you describe a feeling?”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
Tap, tap, tapping away…
Every now and again, I check in with myself and try to analyze whether there are any new symptoms or increase in symptoms already present. At the moment, I think I am still functioning reasonably well in most areas, but there have been a few things that I have noticed. Those are the main thingsContinue reading “Tap, tap, tapping away…”
The road to diagnosis… who did you tell? – Podcast Episode 1
This can be a difficult discussion to have.
Absence makes the heart grow fonder and all that stuff…
Life at the moment is as ever complicated. I am trying to keep up with my blog, try to work out how to record, edit and get a podcast finished and cope with health issues. Life is full of ‘stuff’ that I am trying to do and I find that there is not much thatContinue reading “Absence makes the heart grow fonder and all that stuff…”
Just when things were going so well…
I have in recent times said to my husband and others that I am feeling very happy in my retirement and content. I shouldn’t have tempted fate! About 4-6 weeks ago I started to have pains mostly shooting down my left leg, but also a bit on my right. They were sharp pains but notContinue reading “Just when things were going so well…”
My journey with Parkinsons 