Sometimes I cry…

Sometimes for no apparent reason I cry. I put a brave face on most of the time and can almost ignore the fact that I have Parkinson’s. I go about my daily business, doing my job, living my life and feeling pretty normal. Then out of the blue, it’s like something snaps me back toContinue reading “Sometimes I cry…”

Inspirational

In my work over the years, I have worked with many people in challenging circumstances. They have had sudden devastating illnesses such as strokes and brain tumors, dementia and a vast array of other conditions. I have worked with them and their families and done my best to support them as they either progress –Continue reading “Inspirational”

Peer Support…

Who are our peers? Tonight, for the first time in a long time, I attended a Peer Support group run by our local MS & Parkinson’s Society. I had enquired about the group after I received an email notice that it was coming up. Previously, I had attended a group for people who were inContinue reading “Peer Support…”

A sense of community

I think more and more as I grow older, that I need a sense of community surrounding me. Particularly, now with Parkinson’s I want to be part of something that has caring at its centre. A feeling of belonging and being in a place that’s right for me and right for my husband. Living inContinue reading “A sense of community”

It’s not all about me…

Strange to say, but ‘It’s not all about me’ this Blog is a part of the story of my life in my journey with Parkinson’s, but it is also about my family. With the weekend coming up, I had made plans to have my three grand-daughters to stay for the weekend. They are 13 yearContinue reading “It’s not all about me…”

Is it ‘PD’ or not ‘PD’?

This condition seems to come with a myriad of different symptoms and pain. It feels like every time I turn around something new hurts. I can’t seem to get a break from it and at times it can be quite demoralizing. About a month ago – maybe more – I started getting pain in theContinue reading “Is it ‘PD’ or not ‘PD’?”

Doing my bit…

It has been a different kind of weekend so far this weekend. After not being able to do much recently due to a knee injury, I feel finally I am on the mend. I really miss being active when I have had to rest up, but this weekend I’ve felt much better and able toContinue reading “Doing my bit…”

Leaving a legacy…

In many ways, I find that many of my attitudes in life have changed significantly since my diagnosis. It is important to me to be able to create memories and provide my grand-children with experiences that they can learn from and enjoy. I have spoken before about Parkinson’s making me more focussed on spending timeContinue reading “Leaving a legacy…”

Is it OK to be a bit selfish sometimes??

This journey I am on with Parkinson’s has many twists and turns and challenges. It has made me appreciate life more in many ways. As I have said in other posts previously, my family has become more important to me and spending time with them is high on my list of priorities. However, there areContinue reading “Is it OK to be a bit selfish sometimes??”

Acts of Service…

I came across this on another Blogger’s site. It reminds me of something my husband and I learned years ago from a Counsellor. It is a thing called ‘Acts of Service’. Acts of service, or perhaps my interpretation of it, is saying ‘I love you’ without saying it in words. While it is still lovelyContinue reading “Acts of Service…”