I had lunch this week with my daughter, my youngest child and mother of my three grand-daughters. We started to talk about my Parkinson’s and how I was doing and generally how it has affected me. Life is busy. I work four days a week in a busy and stressful job. I have a husbandContinue reading “A better person… trying to find balance in life”
Category Archives: Getting on with life
I’m doing well
I had an appointment with the Parkinson’s/Neurological Nurse this week. She works closely with my Neurologist and I had had a change of medication recently and he asked her to check how things are going. It was a very positive appointment and she talked through if I had noticed any improvement or had any issuesContinue reading “I’m doing well”
Trying not to focus on ‘the end game’
I saw this posted on a Facebook page this morning for people with Parkinson’s and those that support them. It felt raw and very sad for that person to post this note to his or her Parkinson’s community. As someone also with the diagnosis, I absolutely get what they are saying. How could I not?Continue reading “Trying not to focus on ‘the end game’”
Looking after people I love
I have spoken before about a thing called ‘Acts of Service’ that a Counsellor once described to me. It is about saying ‘I love you’ with actions rather than words. I like to look after people that I love. My husband, my children, my grandchildren. It is my ‘I love you’ in physical form. MyContinue reading “Looking after people I love”
The Serenity Prayer – a philosophy to live by…
I have been watching a series on Netflix and this prayer has been recited several times. Though brought up a Catholic, I consider myself not a religious person these days. However, this prayer, this philosophy if you will, speaks to me. I do feel at the moment in my life a form of acceptance ofContinue reading “The Serenity Prayer – a philosophy to live by…”
Things are going well
This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”
Facing up to reality
Throughout this journey, I have tried to remain real and honest. That means for me that my Blog can sometimes be – if not negative – less positive than some of my posts. I have been in a room with other Parkies people and felt that my symptoms are minimal and under control by comparison.Continue reading “Facing up to reality”
What is ‘normal’?
I am a member of a Facebook page for people affected by Parkinson’s. The question was asked today, ‘what is your normal’? It made me think about how I have never liked the use of that term. After all, what is my normal, may be very different from everyone else’s version of normal and whatContinue reading “What is ‘normal’?”
Discussing the future
It is important to me, that I enjoy life here and now and don’t dwell on what might happen in the future too much. After all none of us have a crystal ball to predict what the future holds, with or without any kind of diagnosis. However, for me there was a conversation I feltContinue reading “Discussing the future”
Travel, memories and moments
I told my brothers as soon as I had the diagnosis. As I said to my husband, for the next 10 years and more – I’m aiming for at least 20 – we are going to spend time with those we love, build beautiful memories and live life to the full! We will travel –Continue reading “Travel, memories and moments”
My journey with Parkinsons 