I have come a long way from those early days of my diagnosis. Even further from the time when it was possible that I was mistaken in thinking I might have Parkinson’s. In doing so, I had forgotten one of the things that happened that made me think I had this condition. Tonight, it wasContinue reading “I had forgotten…”
Category Archives: Getting on with life
Enjoying life’s simple pleasures
It’s a bright, sunny Autumn day and a perfect day for enjoying life’s simple pleasures. A day for spending time with friends or family soaking up the sunshine and fresh air. Today, for the first time in what seems ages I went for a bike ride with my good friend Christine. It was the firstContinue reading “Enjoying life’s simple pleasures”
How are you?
It seems to me that often we say things to each other that sounds like we are asking a particular question, but it turns out we are not? Let me explain. It is like when you go to the supermarket and a bubbly checkout person asks you ‘How are you today?’ The usual response isContinue reading “How are you?”
What this condition has taught me and how it makes me better at what I do…
Wow! That’s a long title… I had a meeting yesterday with my boss and we talked about various aspects of my role as a Social Worker. One of those aspects is that I need to do a certain amount of ‘professional development’ to maintain my professional registration each year. I asked if I could useContinue reading “What this condition has taught me and how it makes me better at what I do…”
A better person… trying to find balance in life
I had lunch this week with my daughter, my youngest child and mother of my three grand-daughters. We started to talk about my Parkinson’s and how I was doing and generally how it has affected me. Life is busy. I work four days a week in a busy and stressful job. I have a husbandContinue reading “A better person… trying to find balance in life”
I’m doing well
I had an appointment with the Parkinson’s/Neurological Nurse this week. She works closely with my Neurologist and I had had a change of medication recently and he asked her to check how things are going. It was a very positive appointment and she talked through if I had noticed any improvement or had any issuesContinue reading “I’m doing well”
Trying not to focus on ‘the end game’
I saw this posted on a Facebook page this morning for people with Parkinson’s and those that support them. It felt raw and very sad for that person to post this note to his or her Parkinson’s community. As someone also with the diagnosis, I absolutely get what they are saying. How could I not?Continue reading “Trying not to focus on ‘the end game’”
Looking after people I love
I have spoken before about a thing called ‘Acts of Service’ that a Counsellor once described to me. It is about saying ‘I love you’ with actions rather than words. I like to look after people that I love. My husband, my children, my grandchildren. It is my ‘I love you’ in physical form. MyContinue reading “Looking after people I love”
The Serenity Prayer – a philosophy to live by…
I have been watching a series on Netflix and this prayer has been recited several times. Though brought up a Catholic, I consider myself not a religious person these days. However, this prayer, this philosophy if you will, speaks to me. I do feel at the moment in my life a form of acceptance ofContinue reading “The Serenity Prayer – a philosophy to live by…”
Things are going well
This week I had my twelve month review – albeit 3 months overdue – and I’m glad I did. In the back of my mind, I think I always wonder if I am doing OK. If I am missing signs of progression and being lulled into a false sense of security. So I had myContinue reading “Things are going well”
My journey with Parkinsons 