A Poem…. What is Parkies to me, well it is a giftI look at my life and my spirit will liftI live with more depth, much less on the surfaceIt’s given me now a life full of purposeIt makes time more precious I spend on this earthIt gives me more focus, it gives me selfContinue reading “What is Parkies to me?”
Category Archives: Getting on with life
Safety and Security
I was reading a post on the Parkinson’s Facebook page that I follow, and it had some thoughts that are worth sharing. The post was relaying an incident that happened to an elderly person in their neighbourhood that had a fall and activated their medical alarm. This was unrelated to Parkinson’s by the way. TheContinue reading “Safety and Security”
Sometimes I’d rather limp…
Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
The importance of Social Support systems…. and identity
I was reading a Blog from another person with Parkinson’s ‘A soft voice in a noisy world’ and he made this comment, which resonates with me. “If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team.” This is so true and I oftenContinue reading “The importance of Social Support systems…. and identity”
Be proud of yourself
Flicking through Facebook Reels and I found this clip. This kid is amazing and I totally agree with what he says. This spoke to me and I wanted to share it with you all. All too often in this journey we might be tempted to focus on the things that are too hard. The thingsContinue reading “Be proud of yourself”
Parkies, Positivity and Purpose…
I was out with my husband today having a coffee in a local cafe. We were talking about a new project that I am working on. He turned to me and said, ‘You know, since you’ve been diagnosed with Parkinson’s you seem to have more positivity and purpose in life.’ I had to agree heContinue reading “Parkies, Positivity and Purpose…”
Accident vs Medical Event…
It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”
A life with purpose… what will I be remembered for?
I think I have always been someone who, from an early age wanted to help and support people. I have had a lots of ups and downs in life, both in relationships and with my health. I have had depression, I’ve recovered and I’ve headed towards depression again in this life. I am happy toContinue reading “A life with purpose… what will I be remembered for?”
A Baker’s cyst…
I have had enough of myself at the moment! My right leg is causing me constant pain and restricting my ability to walk. Just walking around the house is painful and almost beyond me right now, let alone trying to even think of going to the gym. It’s alright for my Physio or Doctor –Continue reading “A Baker’s cyst…”
Finding my tribe…
I often say that there is nothing like a shared experience to bring people together. I know when I was a very young first time Mum – at age 20 – that getting together with other Mums and sharing our experiences and things that worked for us, was really useful. You knew that others wereContinue reading “Finding my tribe…”
My journey with Parkinsons 