I have been re-reading some of my earlier Blogs today and I came across the term ‘Sheer Bloody-Mindedness’. This is a term I often use at work when supporting patients and families who are dealing with a significant health event. So, what is ‘Sheer Bloody-Mindedness’? To me it is that refusal to give up inContinue reading “Sheer Bloody-Mindedness”
Author Archives: kiwipommysue
Parkies and me and my stupid sore knee…
This Blog is supposed to be about my journey with Parkinson’s, my thoughts and feelings and strategies I use to be able to manage. It has been a very effective way of me being able to get things out of my head and process things. In that way, although I post regularly I do notContinue reading “Parkies and me and my stupid sore knee…”
Limping into depression?
It is difficult sometimes to remain positive and to move forward in life with enthusiasm. I am in a place right now where I am struggling with so many unknowns in my life. The ironic thing is that my Parkinson’s is something that I am not too focussed on most of the time, apart fromContinue reading “Limping into depression?”
I’m struggling… so today I asked for help!
As each day goes by it seems that the pain in my life gets worse. The main culprit is my knee. I have written about this before on many occasions and it does occupy far too much of my consciousness for my liking. The ironic thing is that my main ‘condition’ – Parkinson’s – isContinue reading “I’m struggling… so today I asked for help!”
Grief never goes, it ebbs and flows
Grief is something that is ever present when you have lost someone close to you. In 2020 on 4th of October, my oldest son died in his sleep from an undiagnosed heart condition. This was a traumatic event for all the family and we will always grieve his loss. Two months later on 15th ofContinue reading “Grief never goes, it ebbs and flows”
Arrogant Assumptions…
I feel I am naturally programmed to advocate for people. Not just for people I work with as a Social Worker, but also in life. The reason for the title for this particular post is that there are a number of arrogant assumptions in this world, that I really find I need to challenge. IContinue reading “Arrogant Assumptions…”
A poem about a special kind of grief
I met with someone today who is helping me get a project together in writing a book for children. She does some amazing work in helping people deal with the grief of miscarriages, infertility, stillbirth and other under-recognised events that cause people grief. Often people around them are not aware of their grief. She knowsContinue reading “A poem about a special kind of grief”
We’re there for each other… no man (or woman) is an island!
Time for some positivity from me. I’m afraid I’ve been a bit short in that department in these blog posts. Like I said before I have allowed my knee issues to almost completely take over my thoughts. It has not been helpful, but also has been a difficult thing to break out of. I haveContinue reading “We’re there for each other… no man (or woman) is an island!”
The chicken and the egg….
It’s hard sometimes to try and figure out what came first. The problems with Parkies or Arthur (itis) that is! It seems like for several years I have lurched from one health issue to another and things have worsened gradually over time. I watched a presentation by a Parkinson’s association that I follow talking aboutContinue reading “The chicken and the egg….”
It’s not just about my knee…
I was at work today and have had a couple of conversations with my workmates about my knee and my concerns regarding when or if I can get it sorted. The pain is constant now and I have been advised that I need a full knee replacement. Now, I only saw my Orthopaedic Surgeon aContinue reading “It’s not just about my knee…”
My journey with Parkinsons 