My caring husband – not my carer…An interview

After calling for people to be interviewed about their experiences as a PWP or a supporter, I decided I should lead by example. My husband Ade very kindly volunteered – or was conscripted – to be my interviewee. What follows in the interview is a confirmation of what I already knew. That I am soContinue reading “My caring husband – not my carer…An interview”

Be a legend in your own lunchtime! – Podcast

This was a saying in my family growing up. Sounds far less pretentious than aiming to be a lifetime legend. I have started interviewing some professional people for my podcast and they have valuable information to provide on ‘legal things’ like Wills and Enduring Powr of Attorney or Age Concern services and Elder abuse –Continue reading “Be a legend in your own lunchtime! – Podcast”

I’m a hugger, is this a Parkies thing?

I have always been a hugger for those I am close to, like my husband, my children and my grandchildren. I may have become even more so with the advent of Parkinson’s in my life. I wonder if those of you listening to this podcast have noticed an increased tendency to hug? I hope youContinue reading “I’m a hugger, is this a Parkies thing?”

Acts of service – love in a fruitcake

I wrote a blog about this topic many years ago. It came out of a brief counselling session my now husband and I had right at the beginning of our trying to get to know and understand each other. What can I say? It’s a work in progress… Acts of service are the way someContinue reading “Acts of service – love in a fruitcake”

Culling my friend list… Why?

I wrote recently about the importance of having a support network, of having friends and family that I could rely on. Also, the importance of finding people who we could rely on in times of need. Over the last few days, I have been thinking more about this topic. Sometimes I don’t know why theseContinue reading “Culling my friend list… Why?”

Friends to Family, Family to Friends

When I was growing up, there were people in our lives who we called Auntie or Uncle and we always thought of them as that. Several years passed before I remember having a conversation with my Mum and I asked whose side of the family this Auntie and Uncle came from. Mum then told meContinue reading “Friends to Family, Family to Friends”

Which is caused by my back and what is my Parkinson’s?

Although I have retired as of 9/5/2024, I still feel that my Parkinson’s at this stage is not obvious to many around me. I’m not sure sometimes whether that is a good thing or a bad thing. It’s a good thing I think in many ways, because I don’t want the world at large toContinue reading “Which is caused by my back and what is my Parkinson’s?”

Perfect imperfection and Parkinsons – Podcast Episode 18

Some may strive for perfection, but for me, that is aiming too high. I try to be the best that I can be in the moment. My best can change minute to minute, hour by hour or day by day. What is important is to be kind to ourselves and not put pressure on ourselvesContinue reading “Perfect imperfection and Parkinsons – Podcast Episode 18”

Being on the receiving end…

For twenty years I have been a Social Worker retiring in May of this year. I have been accustomed to having some hard conversations with patients and their partner or other family members. I always knew it must be hard to hear that they needed to go into residential care, but I never fully putContinue reading “Being on the receiving end…”