I had to take my husband into the 24 hour surgery – ‘After Hours’ – as he had some chest pains that needed checking out. All is well, but worth checking. Five hours later we were free to go home. A long wait and very boring, so I wrote this poem to help while awayContinue reading “Waiting at the ‘After Hours’”
Category Archives: Symptoms
Comorbidities Confuse Cause or cause confusion!
When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”
To medicate or not to medicate that is the question…
If you are in the early stages of Parkies and even those a few years down the track, there seems to be a lot of variation in when or if people have commenced any sort of medication. This podcast talks about my choice which was to medicate immediately on the advice of my very experiencedContinue reading “To medicate or not to medicate that is the question…”
A health stocktake
From time to time, I check in with myself to see if I have noticed any new symptoms, aches, pains or ‘funny stuff’ going on with my body. Did that this morning and have written a podcast about it which I will put below. Things I have noticed though So, below is the link toContinue reading “A health stocktake”
Seeing your GP, Specialist or Physio/Allied Health
As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”
Pride goeth before a fall
It is a nice sunny day today and normally I would go for a bit of a walk around our beautiful garden. However, I am trying to limit my walking because my right leg keeps going numb and that doesn’t feel safe. So, risk minimization is the key for this next two days. I thinkContinue reading “Pride goeth before a fall”
A world of pain and uncertainty
How does anyone ‘do life’ if there is an almost total lack of certainty? Add to that a healthy dose of pain and – it seems – as I said to someone this morning ‘every pain medication known to mankind’ life feels a bit tough at the moment. That’s the understatement of the year, that’sContinue reading “A world of pain and uncertainty”
I pity those who support me – Podcast
This podcast is about the challenges of supporting someone with Parkinson’s. For the person with Parkinson’s themselves to know what they need is difficult enough, but being able to convey that to others can be a real challenge. On the one hand, we want to maintain independence, on the other hand we may get upsetContinue reading “I pity those who support me – Podcast”
Tap, tap, tapping away…
Every now and again, I check in with myself and try to analyze whether there are any new symptoms or increase in symptoms already present. At the moment, I think I am still functioning reasonably well in most areas, but there have been a few things that I have noticed. Those are the main thingsContinue reading “Tap, tap, tapping away…”
I miss being me…
You might think that is a bit of a strange thing to say and it probably is. The me that I miss, is the me that is independent and does her own thing. The me that spur of the moment, will jump in her car and go look at Op Shops or go look aroundContinue reading “I miss being me…”
My journey with Parkinsons 