Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
Category Archives: Other people’s attitudes
The importance of Social Support systems…. and identity
I was reading a Blog from another person with Parkinson’s ‘A soft voice in a noisy world’ and he made this comment, which resonates with me. “If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team.” This is so true and I oftenContinue reading “The importance of Social Support systems…. and identity”
Be proud of yourself
Flicking through Facebook Reels and I found this clip. This kid is amazing and I totally agree with what he says. This spoke to me and I wanted to share it with you all. All too often in this journey we might be tempted to focus on the things that are too hard. The thingsContinue reading “Be proud of yourself”
Accident vs Medical Event…
It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”
Collective Wisdom…
I found this definition of Collective Wisdom and I think it illustrates the point of this post very nicely. “Collective wisdom, also called group wisdom and co-intelligence, is shared knowledge arrived at by individuals and groups.” I went along to something that was referred to as a “Workshop” last night and I’m afraid it fellContinue reading “Collective Wisdom…”
Facing the future….
I’m not ready yet! As any of you will know that have read my Blog along the way, I very much try to live in the moment and not think too far ahead. Not an easy thing to do when you are a ‘planner’ like me. In many ways though, I am planning in theContinue reading “Facing the future….”
Invisible disabled access!
My husband and I had a night in town for a concert we went to on Friday night. The concert was amazing and we had a lovely time. We decided a few weeks ago that we would have an early dinner before the show, so we weren’t either having empty or too full grumbling tums.Continue reading “Invisible disabled access!”
Your glowing screen offends me…
We had been looking forward to a concert by The Proclaimers and attended it last night. The concert was incredible, with lots of memorable songs that we all knew and some new ones from their latest album. However, there was one thing that really got on my nerves! Why is it that people think itsContinue reading “Your glowing screen offends me…”
I am grateful…
A Parkinson’s Facebook Page that I am on asked the question ‘what are you grateful for?’ One thing I love about that page is the sense of community and positivity that it gives us all. Sometimes, while we are working our way through life with a degenerative condition, it is all too easy to focusContinue reading “I am grateful…”
We are the experts! Parkies People
In my last post, I talked about the value of being with others who have similar experience that we can connect to. I also spoke about a conference my husband and I attended in Rotorua a couple of years ago. It was shortly after I was diagnosed and while I had some hesitation about going,Continue reading “We are the experts! Parkies People”
My journey with Parkinsons 