Neurology check-up

Today I had the appointment I have been waiting for, for literally years. We finally got in to see my Neurologist. My husband and I were sure that we had not seen him since the day of my diagnosis. However, to our surprise he produced a letter to our GP outlining a meeting we hadContinue reading “Neurology check-up”

A word with my GP

As a follow-up from a previous post about my lack of contact with my Neurologist, I thought I would make a comment and update where I am now. So, my husband and I went to the Doctor yesterday, so I could talk to him about a number of things which may be Parkies related andContinue reading “A word with my GP”

Off my game… does that mean?

So today I went to play bowls as I have been doing for a few months now. Tuesdays and Saturdays and it’s a great way to get exercise and socialise with others and have a good afternoon out. It is interesting to note that on Tuesday when I played I had two really good games.Continue reading “Off my game… does that mean?”

Everything and everyone is getting old in our house…

Just when you think all is going smoothly – well relatively for those of us with a ‘Murphy’s Law’ or in our household ‘Ade and Sue’s Law’ – life throws a few curve balls that throw you out of kilter. Firstly, the appliances. Both our coffee machine and our toaster decided to stop working. TheContinue reading “Everything and everyone is getting old in our house…”

Subtle changes

I have gradually become aware that I am going through some subtle changes with my Parkinson’s. In another recent post I talked about how some of my workmates have gently told me that they are noticing some cognitive changes. Apparently, they have noticed that I can sometimes be forgetful or am repetitive in my speech.Continue reading “Subtle changes”

Been for my WOF (Warrant of Fitness)

Today I had a catch-up with my Neurologist’s Parkinson Nurse and it was good to have a chance to meet face to face to talk about some of my latest issues. I told her about the shooting pains I am experiencing down my legs and it appears that it is unlikely to be anything toContinue reading “Been for my WOF (Warrant of Fitness)”

A dress rehearsal for Parkies?

I commented to my husband this morning that I feel like my body is attacking me. Not only am I recovering from pretty major knee surgery, but I have another issue plaguing me. I find that if I sit and rest for a bit after walking around, that as soon as I stand up I get electricContinue reading “A dress rehearsal for Parkies?”

Parkinson’s fear and shame…

I have started listening to a Podcast today titled “Fear and Shame in Parkinson’s”. They had a panel of people with Parkinson’s talking about the topic and what it means to them. I have to say, it is very easy to see the fear part of the Podcast topic. Let’s face it, if you focusContinue reading “Parkinson’s fear and shame…”

Parkies and anaesthetic

I am now in the countdown to my knee replacement surgery, having finished work and I have just 11 days till my surgery. My boss was very understanding to give me the whole of the week before my surgery week on leave. This is a great opportunity to isolate myself as much as possible fromContinue reading “Parkies and anaesthetic”

Ask for help when it’s needed

In my last post I talked about the pain I experienced overnight that kept me awake and basically meant that I had to get up at 5am as I couldn’t sleep with the pain. I have had a few pain issues at night from time to time but haven’t really thought too much about itContinue reading “Ask for help when it’s needed”