Subtle changes

I have gradually become aware that I am going through some subtle changes with my Parkinson’s. In another recent post I talked about how some of my workmates have gently told me that they are noticing some cognitive changes. Apparently, they have noticed that I can sometimes be forgetful or am repetitive in my speech.Continue reading “Subtle changes”

For my friends… I know it was hard for you to say!

My friends had the difficult job of telling me some honest truths about my symptoms, which unfortunately I didn’t realise had become noticeable… So, I wrote them a poem. I cruise through life so slowly and try to do my bestI’m grateful for my family, for I am truly blessedAlthough I do have Parkies, IContinue reading “For my friends… I know it was hard for you to say!”

Be careful what you ask for…

One thing that I know, is it can be when someone is asked a question about their driving – ‘I’m a good driver’ – or how much they drink ‘just a glass of wine each night’ – or ‘I don’t need to write things down, I’ll remember’ their truth may not be ‘the truth’ asContinue reading “Be careful what you ask for…”

Not feeling particularly good right now

There are two dates in my life that I very much struggle with these days. One is 4/10 – the date on which my eldest son Adam passed away in 2020. The other is 3/11 – the date of his birthday. He would have been 42 years of age this Friday. I am finding itContinue reading “Not feeling particularly good right now”

Precious memories of a precious son….

The year 2020 was one of the most difficult years of our lives. We had COVID to deal with, lock downs and my diagnosis on 15/12/20. The most significant and difficult thing that happened that year though was that my oldest son Adam passed away unexpectedly in his sleep from an undiagnosed heart condition. TheContinue reading “Precious memories of a precious son….”

Limping into depression?

It is difficult sometimes to remain positive and to move forward in life with enthusiasm. I am in a place right now where I am struggling with so many unknowns in my life. The ironic thing is that my Parkinson’s is something that I am not too focussed on most of the time, apart fromContinue reading “Limping into depression?”

Grief never goes, it ebbs and flows

Grief is something that is ever present when you have lost someone close to you. In 2020 on 4th of October, my oldest son died in his sleep from an undiagnosed heart condition. This was a traumatic event for all the family and we will always grieve his loss. Two months later on 15th ofContinue reading “Grief never goes, it ebbs and flows”

A poem about a special kind of grief

I met with someone today who is helping me get a project together in writing a book for children. She does some amazing work in helping people deal with the grief of miscarriages, infertility, stillbirth and other under-recognised events that cause people grief. Often people around them are not aware of their grief. She knowsContinue reading “A poem about a special kind of grief”

It’s not just about my knee…

I was at work today and have had a couple of conversations with my workmates about my knee and my concerns regarding when or if I can get it sorted. The pain is constant now and I have been advised that I need a full knee replacement. Now, I only saw my Orthopaedic Surgeon aContinue reading “It’s not just about my knee…”

Grief and Loss…

I was looking at the Facebook Page I follow the ‘Aust and NZ Parkinson’s Support Group and Chat’ and sadly there was a post from a husband whose wife with Parkinson’s (WWP) has just passed away. I offered my condolences and expressed the hope that the happy memories they shared over their lives would beContinue reading “Grief and Loss…”