Precious memories of a precious son….

The year 2020 was one of the most difficult years of our lives. We had COVID to deal with, lock downs and my diagnosis on 15/12/20. The most significant and difficult thing that happened that year though was that my oldest son Adam passed away unexpectedly in his sleep from an undiagnosed heart condition. TheContinue reading “Precious memories of a precious son….”

Limping into depression?

It is difficult sometimes to remain positive and to move forward in life with enthusiasm. I am in a place right now where I am struggling with so many unknowns in my life. The ironic thing is that my Parkinson’s is something that I am not too focussed on most of the time, apart fromContinue reading “Limping into depression?”

Grief never goes, it ebbs and flows

Grief is something that is ever present when you have lost someone close to you. In 2020 on 4th of October, my oldest son died in his sleep from an undiagnosed heart condition. This was a traumatic event for all the family and we will always grieve his loss. Two months later on 15th ofContinue reading “Grief never goes, it ebbs and flows”

A poem about a special kind of grief

I met with someone today who is helping me get a project together in writing a book for children. She does some amazing work in helping people deal with the grief of miscarriages, infertility, stillbirth and other under-recognised events that cause people grief. Often people around them are not aware of their grief. She knowsContinue reading “A poem about a special kind of grief”

It’s not just about my knee…

I was at work today and have had a couple of conversations with my workmates about my knee and my concerns regarding when or if I can get it sorted. The pain is constant now and I have been advised that I need a full knee replacement. Now, I only saw my Orthopaedic Surgeon aContinue reading “It’s not just about my knee…”

Grief and Loss…

I was looking at the Facebook Page I follow the ‘Aust and NZ Parkinson’s Support Group and Chat’ and sadly there was a post from a husband whose wife with Parkinson’s (WWP) has just passed away. I offered my condolences and expressed the hope that the happy memories they shared over their lives would beContinue reading “Grief and Loss…”

Talking about death….

We are staying with some good friends who live around the Chester area. We are all in the over 60 Brigade. We were having breakfast together this morning and somehow the topic of death came up. We are all old enough that we have had friends pass away and also parents and in my caseContinue reading “Talking about death….”

Accident vs Medical Event…

It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”

The problem with doing well… a hidden disability

I have been open from almost the first day of diagnosis about my having Parkinson’s. I have shared it with my family and friends and also my colleagues at work. At first people were very sympathetic and it felt like they understood that I might be more challenged by things than previously. However, just likeContinue reading “The problem with doing well… a hidden disability”

Coping

I watched this presentation yesterday by Matthew Croucher. He is such a good presenter and he presented at the Parkinson’s Conference my husband and I went to a few years ago. The previous topic was about Anxiety, which is very much one of the things that go with Parkinson’s. He talked about ‘Coping’ with Parkinson’sContinue reading “Coping”