So today we went to see my sister in-law’s farm in Derbyshire. It is set in lovely English countryside. We decided to go for a bit of a walk around the farm as it’s the first time we had been there. As stated in previous posts I have had a lot of trouble with myContinue reading “A stile with style…”
Category Archives: self-care
Taking Parkies on holiday…
It seems like a long time ago we started planning a trip to the UK to see family and friends. On 3 May 2023, after a few days in Singapore, we landed in England for a nine week holiday. This is the first time we have been to the UK since my diagnosis. Not onlyContinue reading “Taking Parkies on holiday…”
Safety and Security
I was reading a post on the Parkinson’s Facebook page that I follow, and it had some thoughts that are worth sharing. The post was relaying an incident that happened to an elderly person in their neighbourhood that had a fall and activated their medical alarm. This was unrelated to Parkinson’s by the way. TheContinue reading “Safety and Security”
Sometimes I’d rather limp…
Let me just say, that at this stage my Parkinson’s is very manageable and I am lucky in that regard. My medications work well – even though I often take them late – and I don’t seem to have any real issues with mobilising. The thing is this. I have an injured knee at present.Continue reading “Sometimes I’d rather limp…”
The importance of Social Support systems…. and identity
I was reading a Blog from another person with Parkinson’s ‘A soft voice in a noisy world’ and he made this comment, which resonates with me. “If you choose to isolate yourself and avoid the camaraderie of others, you are missing a vital component of your support team.” This is so true and I oftenContinue reading “The importance of Social Support systems…. and identity”
Where do you go for help?
I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”
Be proud of yourself
Flicking through Facebook Reels and I found this clip. This kid is amazing and I totally agree with what he says. This spoke to me and I wanted to share it with you all. All too often in this journey we might be tempted to focus on the things that are too hard. The thingsContinue reading “Be proud of yourself”
Being available and being mindful of boundaries
I started this Blog soon after I was diagnosed with Parkinson’s on 15/12/2020. It had been a difficult year with lockdown, a personal tragedy and then the diagnosis. I needed to process what was happening to me and also wanted to try to help others through sharing my experiences along the way. My thoughts andContinue reading “Being available and being mindful of boundaries”
Accident vs Medical Event…
It is difficult sometimes to do the work that I do and to see the huge impact that a major health event has on the patients and families I do my best to support. Most of the people who are admitted to the Ward are under 65 years of age. There are a few exceptions,Continue reading “Accident vs Medical Event…”
Collective Wisdom…
I found this definition of Collective Wisdom and I think it illustrates the point of this post very nicely. “Collective wisdom, also called group wisdom and co-intelligence, is shared knowledge arrived at by individuals and groups.” I went along to something that was referred to as a “Workshop” last night and I’m afraid it fellContinue reading “Collective Wisdom…”
My journey with Parkinsons 