podcast – Page 8 – My journey with Parkinsons

I love my husband – A poem not about Parkinson’s

Just because life is not all about Parkinson’s, I like to write and share the odd poem and this is an odd poem! I hope you like it.

A hidden issue – how can I be seen?

I’ve written before in this blog about hidden disabilities and how challenging it can be to not only live with them, but for others to understand. I often use the analogy of a person in a wheelchair at the bottom of some steps. No reasonable person would expect them to be able to get upContinue reading “A hidden issue – how can I be seen?”

There are no experts in Parkinson’s – Oh, yes there are – A Podcast

As a follow on from the previous blog post, I thought I would add the podcast in case you might like to listen to it. I always say that we are the ones who are experts and I firmly believe that. No two Parkinson’s presentations are the same. Your Parkinson’s will be different from everybodyContinue reading “There are no experts in Parkinson’s – Oh, yes there are – A Podcast”

Acts of service – love in a fruitcake

I wrote a blog about this topic many years ago. It came out of a brief counselling session my now husband and I had right at the beginning of our trying to get to know and understand each other. What can I say? It’s a work in progress… Acts of service are the way someContinue reading “Acts of service – love in a fruitcake”

Why I think I’m qualified to talk about Parkinson’s

I am the third person in the family to have Parkinsons. Both my Mum and Dad had Parkinsons and I supported them in their journeys. Now, I have Parkinsons and was Diagnosed on 15/12/20. In addition, I have 20 years of experience in working with people with various health issues, including health issues relevant toContinue reading “Why I think I’m qualified to talk about Parkinson’s”

Discussing the future – Podcast

The is an important topic and one which is never going to be easy. However, the way I wanted to handle it was to initiate the discussion early so that I could fully participate. My husband was reluctant to discuss at first as he felt it was far too early to do so. I originallyContinue reading “Discussing the future – Podcast”

Maybe I’ve been a bit harsh!

A few days ago I wrote a post about culling my Facebook friend list. After a discussion with someone whose opinion I value, I realised that maybe I had been a bit harsh. There may be many reasons why we don’t keep in contact with people and some of those reasons we don’t necessarily shareContinue reading “Maybe I’ve been a bit harsh!”

Culling my friend list… Podcast

I’ve done an extensive cull of my friend list on Facebook. I talk about the reasons for this in this podcast. At times I am very emotional, in fact I am crying talking about the memory of what my big brother did for me, when I really needed someone. My husband would probably say toContinue reading “Culling my friend list… Podcast”

The bucket of joy – not a bucket list – Podcast

Many people seem to come up with a ‘bucket list’ if given news that they have a terminal illness. The list comprises things they want to do before it is too late to do them. To me that is quite a negative thing to do, so I thought I would turn it on it’s head.Continue reading “The bucket of joy – not a bucket list – Podcast”

The weird things you need to know about me…. Podcast

This is an opportunity for those that know me and also of course for those who don’t, to know some of the weird things about me. My children have for many years told me that I was weird and you are likely to have the same opinion when you listen to this. It was aContinue reading “The weird things you need to know about me…. Podcast”