I am a member of a very supportive Facebook Page for people with Parkinson’s in Australia and New Zealand. It is for the most part a positive page and a great forum for discussion about the things that affect us Parkies folk! I read with concern a post by a member of the group, whoContinue reading “Disability Discrimination and ignorance…”
Category Archives: Other people’s attitudes
Don’t give up the struggle…. let people know you need help!
This can be a tough old life with Parkies. Not just for the Parkies person themselves but also for their partner and often for their wider family/whanau group too. As someone who fiercely holds onto their independence, it is sometimes difficult to put my hand up and say that I am struggling. However, I haveContinue reading “Don’t give up the struggle…. let people know you need help!”
A bit of black humour with the grandies…
This weekend I have had the grandgirls staying again and baking etc. We spent all day baking inside yesterday and as it is a beautiful sunny day today, I got the girls to put down their devices and come outside and play some games. I have a number of wooden outdoor games to play whenContinue reading “A bit of black humour with the grandies…”
Let’s talk about the future…
There are many things that as adults we need to consider at some point in the future. Especially, as we age it is important that those that love and support us know what our wishes are. This is not an easy thing to think about or talk about, but can be very important not justContinue reading “Let’s talk about the future…”
Childhood memories are the best memories
Today at work we had a ‘Bake off’ competition and this was my offering for it. The theme was ‘Childhood Memories’ and so I modelled my entry on my eldest son Adam’s first birthday. I was only 21 and should have known better… So, for his first birthday I made the following, as in theContinue reading “Childhood memories are the best memories”
All things ‘smart’
Saw this on a page I follow on Facebook. It is so challenging these days to try to do anything without so called ‘smart’ technology. When we were overseas we tried to buy a slice of cake and a coffee at the cafe of the Hotel we were staying in in Singapore. We were toldContinue reading “All things ‘smart’”
Parkinson’s and emotionality
I have started to watch a presentation today about Parkinson’s and emotions in the early years. I found that I could easily identify with the three people with the diagnosis who were on the panel. They talked about feelings of disbelief, denial and devastation. I know that I was expecting the diagnosis in many ways,Continue reading “Parkinson’s and emotionality”
OMG… I’m a grey haired Granny with a stick!
I will admit that I am feeling old for my years at the moment. The combo of Parkies and the offending lower limb issue – non Parkies related – is certainly making me feel my age and then some! I was at the supermarket today getting a few bits and pieces. I parked in theContinue reading “OMG… I’m a grey haired Granny with a stick!”
It’s not just ‘the shakes’
I had my niece visiting from Australia the other day and she came round with her Mum for a catchup with myself, my husband and my daughter and her girls. I was in the kitchen and she came in for a chat. She made a comment – which by the way I appreciate – thatContinue reading “It’s not just ‘the shakes’”
Parkies is a part of me – whether I like it or not!
I was talking to my granddaughters in the spa pool this evening as they are staying for a couple of nights. It has become a place to get away from devices and talk about things. We talk about all manner of things and some of the discussions we have – especially with one of theContinue reading “Parkies is a part of me – whether I like it or not!”
My journey with Parkinsons 