Seeing your GP, Specialist or Physio/Allied Health

As we go down this road with Parkinson’s as the unwelcome hitchhiker that they are, we need to develop strategies to make the most of opportunities for help. One of the situations that it is important that we get right, is when we find ourselves in front of a medical professional or allied health. IContinue reading “Seeing your GP, Specialist or Physio/Allied Health”

Fighting for my rights – being my own advocate!

I have mentioned recently that I have been trying to get an appointment with my Neurologist, with no effect thus far. I will have been diagnosed four years ago on 15/12/20 and at the time of diagnosis, I was told that I would see my Neurologist annually. However, I have not had an appointment withContinue reading “Fighting for my rights – being my own advocate!”

Where do you go for help?

I was reading a few posts on a Facebook Page I am a member of for people with Parkinson’s. The person concerned was asking for someone who could act as an advocate for them to try to navigate their way through funding information. They also wanted to know about requirements for supports for at homeContinue reading “Where do you go for help?”

Finding – and training – a new GP

For the last at least 10-15 years I have had the same GP and so has my husband. He has seen me through diagnosis of depression (many years ago), arthritis (and operations to replace finger joints for this), a Hiatus Hernia, Esophageal Dysmotility (swallowing issues) and most recently of course, Parkinson’s. Sometimes, rightly or wrongly,Continue reading “Finding – and training – a new GP”

Why are doctors reluctant to refer?

I met with someone recently who I know and who I was unaware has also recently been diagnosed with Parkies. They are in the early stages – just six weeks ago – and very much going through the ‘Grief and Shock’ stage. Their story struck a chord for me for many reasons. I remember theContinue reading “Why are doctors reluctant to refer?”