Other people’s attitudes – Page 29 – My journey with Parkinsons

A life described as a ‘Tragedy’ – how dare they!

We all know how Social Media works, through the magic of technology we are often ‘treated’ to videos, Memes and other items based on our interests and what we ‘click’ on. Today, a video popped up on my feed and – you may recognise the gentleman in the photo – an image of Michael JContinue reading “A life described as a ‘Tragedy’ – how dare they!”

I had a fall – don’t blame Parkies!

In the lead up to New Year’s Eve we have been getting our new house organised. We had just moved in on 21/12, so 10 days in and we are still surrounded by boxes in many areas. We were having our three grand-daughters to stay and had purchased a new Queen/King-Single bunk set. My husbandContinue reading “I had a fall – don’t blame Parkies!”

Being Brave

I have been described by colleagues as being ‘brave’ but what does that mean to me? To me being brave is getting up every morning and doing my job, but it can also be waking up in the morning and saying ‘today I can’t go to work, I need a break and time out toContinue reading “Being Brave”

Peer Support

I have worked in a number of jobs where there have been support groups available for people with certain health conditions in common. These groups can be invaluable as people often have similar shared experiences and knowledge of what has – or hasn’t – helped for them. It reminds me of when I was aContinue reading “Peer Support”

To tell or not to tell that is the question!

One of the first discussions my husband and I had following my diagnosis, was how soon to tell people, especially at work. Being a very private person, his take was “you don’t have to rush into telling people”. I thought about this for a nano-second – yes, I can be very decisive when I wantContinue reading “To tell or not to tell that is the question!”

The journey to diagnosis

First a bit of background about me. I am the youngest of four children and the only girl of an English Father and Kiwi mother. As it turned out, both my parents ended up with Parkinson’s in their late 50’s (my Dad) and mid 60’s (my Mum). As far as I know, no-one else inContinue reading “The journey to diagnosis”