Recovery or regression?

At the moment I am away for a few days with my husband. After four years of pain both from my knee and my back it is sometimes difficult to figure out what causes each new bout of pain. We were going for a gentle bush walk and I was feeling very tired right fromContinue reading “Recovery or regression?”

An interview with Jeremy

I recorded this interview a few months before Christmas and for some reason, the gremlins got in and it didn’t work properly. I have spent months – when I had the time – trying to get some help to fix it so that it could be uploaded. Over the last two days, I have finallyContinue reading “An interview with Jeremy”

Feeling ‘Parkies’ today…

In my life at the moment, for the most part I just carry on with my life and am very much enjoying my retirement again. I am enjoying the various activities I have chosen and most days I have something planned that I enjoy doing. I can therefore, just get on with things and notContinue reading “Feeling ‘Parkies’ today…”

“At your age”…

Those of you who have followed me for a while will know that I have a confusing cocktail of conditions (the CCC’s) one of them being of course Parkinson’s aka Parkies. It is sometimes difficult to find the cause of a particular symptom or pain because of this. I have back pain, but have undergoneContinue reading ““At your age”…”

The truth will set you free…

I am a 64 year old woman with Parkinson’s, married to my third husband and very happily so. My first husband was the father of my three children and we separated and ultimately divorced when they were all quite young. We had some challenging years ahead of us, some ill feeling on both sides whichContinue reading “The truth will set you free…”

It’s not just “Shake and Shuffle”

I was out today with my cousin and my 89-year-old uncle. Periodically we like to go trawl around the Op Shops together. Today was a beautiful day and we were enjoying each other’s company. After visiting the first shop we decided it was time for a coffee and a comfort stop. We went to theirContinue reading “It’s not just “Shake and Shuffle””

Health funding versus ACC New Zealand

This has long been a bone of contention with many of us here in New Zealand. The vast cavernous gulf between what you are entitled to if you have a health condition like Parkinson’s, Stroke, Dementia and many others. There is a stark comparison with those that have an accident – even if the negativeContinue reading “Health funding versus ACC New Zealand”

Carrying on decluttering

I have spoken before about clearing out my house of things that I feel I no longer need. I have really been on a roll this past few weeks, clearing out and moving on without the excess baggage – in one case, quite literally – that I don’t need to keep. I am gradually movingContinue reading “Carrying on decluttering”

Comorbidities Confuse Cause or cause confusion!

When you have a bunch of different health issues – ie. Comorbidities – it is sometimes difficult to know the cause of a new ache or pain and/or who to talk to about it! The risk of course is that we just shrug our shoulders and think it must be related to Parkinson’s when itContinue reading “Comorbidities Confuse Cause or cause confusion!”

I’ve been neglecting my blog…

It is difficult for me to imagine not having my blog and my podcast as an avenue to process all that has happened for me and still happening. I have been diagnosed now for about 4.5 years, my anniversary being on 15/12 which will be five years. Some have said that focussing on my Parkinson’sContinue reading “I’ve been neglecting my blog…”