I met with someone recently who I know and who I was unaware has also recently been diagnosed with Parkies. They are in the early stages – just six weeks ago – and very much going through the ‘Grief and Shock’ stage. Their story struck a chord for me for many reasons. I remember theContinue reading “Why are doctors reluctant to refer?”
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I don’t have time for Parkies right now!
I have been a bit absent from my Blog for the last couple of weeks. Maybe that’s a good thing? A good thing because maybe I am letting go of my focus on Parkies and what it means for my life. Maybe, just maybe, I am finding a space slowly that puts Parkies in theContinue reading “I don’t have time for Parkies right now!”
Decision made – the three of us are moving (my husband, Parkies and I)
So this is it. Big decision made. Contract signed to sell our beautiful, beloved home. This is a decision not lightly made by either of us (with Parkies looking over my shoulder). It is a hard decision, but we are agreed the right one. The ‘sensible’ one. The ‘adult’ one. We are planning for theContinue reading “Decision made – the three of us are moving (my husband, Parkies and I)”
A mixed bag this week
I am aware that in recent times my blog posts have not been the most positive. With everything that happens in life, work/life balance etc just getting through a week can be stressful. There have been high points and not so high points – no real lows, so that’s a bonus – and so, yes,Continue reading “A mixed bag this week”
I wish I could live more in the moment..
Yesterday I met for the first time another person affected by Parkinson’s, who has been diagnosed longer than I have. She seemed so together and – while she acknowledged her challenges in life – talked about living in the moment and not worrying about what will happen in the future so much. I wish IContinue reading “I wish I could live more in the moment..”
‘Adulting’ is hard…
I am very much trying to face this thing I call ‘Parkies’ head on. Being proactive, rather than reactive as much as I can. There are decisions I could easily defer for a while, but not knowing what ‘a while’ looks like can at times be difficult. So, one of the decisions I have beenContinue reading “‘Adulting’ is hard…”
Should I wait or lose weight?
For most of my life I have battled with my weight, trying various avenues to reduce my weight, with varying levels of success. Right now I am overweight, no getting around it – my husband says I’m not fat, just ‘chubby’. Any way you look at it, I could do with shedding a few kilos.Continue reading “Should I wait or lose weight?”
Grief, Depression(?) and Big decisions
It has been a challenging time, this last few months. Not only have I recently been diagnosed with Parkies, but lost someone very close and dear to me two months before. So, to me it is natural that I am grieving for the loss of a special person in my life, but also the lossContinue reading “Grief, Depression(?) and Big decisions”
Planning for the future
While I try my best to live for today, I continue to consider and plan for the future and what changes we may need to make in our lives together. I am a planner. I always have been. Partly, it’s my training as a Social Worker, looking at the ‘what if’s?’ We live in aContinue reading “Planning for the future”
Medication – A lesson learned!
Well, that was a difficult lesson to learn, but maybe I needed to learn it. I suppose with all that I have been doing, I have been lulled into a false sense of security when it comes to my medications. So here’s what happened… I take pramipexole three times a day, breakfast, lunch and dinner.Continue reading “Medication – A lesson learned!”
My journey with Parkinsons 