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Planning for the future

While I try my best to live for today, I continue to consider and plan for the future and what changes we may need to make in our lives together. I am a planner. I always have been. Partly, it’s my training as a Social Worker, looking at the ‘what if’s?’ We live in aContinue reading “Planning for the future”

Medication – A lesson learned!

Well, that was a difficult lesson to learn, but maybe I needed to learn it. I suppose with all that I have been doing, I have been lulled into a false sense of security when it comes to my medications. So here’s what happened… I take pramipexole three times a day, breakfast, lunch and dinner.Continue reading “Medication – A lesson learned!”

We don’t hold hands anymore..

We don’t hold hands anymore Parkies has left me bereft We don’t hold hands anymore For I must swing my left We don’t hold hands anymore As we’re walking down the street We don’t hold hands anymore A stroll feels incomplete We don’t hold hands anymore I feel a sense of loss We don’t holdContinue reading “We don’t hold hands anymore..”

Making Memories with those I love

Since being diagnosed, I’ve noticed very much that my priorities have changed. Life is still busy, as I work four days a week in a busy stressful job, plus I have been doing my intensive four week exercise programme. However, I am trying to make a conscious effort to spend more time with family. Yesterday,Continue reading “Making Memories with those I love”

An end and a beginning

So today marks the end of my journey with my physio. For four weeks he has come to my home and put me through my paces. I have struggled and muttered at times, but I have definitely seen the difference it has made to me physically and mentally. I still have times – especially afterContinue reading “An end and a beginning”

Final week – Progress and Planning

So, this is my last week of a four week block working out with my physiotherapist. He is a hard taskmaster, but I can honestly say, I have been inspired and motivated by our sessions. It has been a challenge committing to getting up each morning early to do my exercises – especially in theContinue reading “Final week – Progress and Planning”

Parkies is taking over my life, so it doesn’t take over my life!

Does that even make sense? Let me explain. I am slowly and surely feeling a little less swallowed up by the grief of my diagnosis. I am getting on with my life, working, socialising and doing many of the things I did before my diagnosis. How am I doing that? By being proactive and focussingContinue reading “Parkies is taking over my life, so it doesn’t take over my life!”

The exercises are working!

I am now in the third week of exercises where I get up early each morning and do my set exercises and every afternoon work with my physiotherapist. It is a commitment, but I think it will be worth it in the long run! Today, I noticed something amazing! I have been consciously telling myselfContinue reading “The exercises are working!”

Feel the fear and do it anyway!

For my ‘significant’ birthdays – first my 50th and most recently my 60th – I have chosen to challenge myself and do something that is ‘cool’ but also challenges my fears. For my 50th I chose a tandem skydive – as I am scared of heights – and jumped out of a plane strapped toContinue reading “Feel the fear and do it anyway!”

Who cares for the carer?

First of all, this begs the question, what or who is a carer? A carer, by my definition is someone who cares. Someone, who often puts other’s needs before their own and sometimes to their own detriment. I’m not necessarily talking about caring in a practical hands on helping with daily tasks kind of wayContinue reading “Who cares for the carer?”