I am struggling at the moment with my limited mobility and the need to use aids. I had lunch with my adult daughter this week and it was the first time we had really seen each other since I started to have the issues which lead me to needing a walking aid.
Right from the beginning, I said to my daughter that the need to have a walker was in no way associated with my Parkinson’s. I told her it was important to me that she knew and that others also knew that my mobility issues have nothing to do with my diagnosis. I also would hate people that I previously worked with seeing me out and about at the moment and thinking that I had deteriorated quickly soon after retiring.
I am so annoyed with what has been happening with my body over the last almost three months. I feel that it is so unfair that this back issue has robbed me of three high functioning months – which is where I was at before the injury – and I need to get back to that functional level as soon as possible.
We are seeing the Neurosurgeon on Wednesday and we are hoping that he is able to find a solution to all these pain and mobility issues. Life certainly can’t go on like this. We have said on many occasions that we don’t know how someone on their own would manage. The pain is ridiculously bad and there is no way someone could manage to live their lives in this state without someone there to support them.
Anyway, specialist appointment on Wednesday. Let’s hope this leads to a plan and a solution that does not have attached to it months of waiting for something else, or another drug that makes no difference.
My journey with Parkinsons 
All the very best for Wednesday Sue.Keep an open mind.Life and living can change very quickly.My husband has Melonomna surgery tomorrow (not the first time)PD patients are more likely to come up with these issues the Surgeon tells us. There are three PD patients having skin surgery operations, in one afternoon.I have researched this, there are some interesting papers written on the topic. Who would have thought…I just assumed it was only NZ Sun and Irish skin.Sending lots of love and support to you and your husband.Sent from my Galaxy
LikeLike
Hi. Thank you once again for your wise and incredibly kind words. You are right that life can change in an instant and there have been many changes along the way on this journey. We are currently having a couple of days away in Kaikoura. Even though I can’t do anything too active, I can still awaken to the sound of the birds in the trees and the views of the snow capped mountains. While my husband is off doing a big walk I am happily sitting looking at the view and crocheting. Trying my best to acknowledge and appreciate what I do have and the things I can do and not focus too much on the less positive side of my life. Three months of chronic and significant pain does wear you down though. I’m ready for some answers and something that gives me a plan on how we can deal with this. I shouldn’t be taking all the pain killers I am and still be in such pain. Mind you if I wasn’t taking them and the pain was even worse, I said to my husband that I would be a gibbering wreck rocking in the corner of the room.
LikeLike
Good luck with your Neurologist appointment on Wednesday. I know you must feel so frustrated with what’s going on. Let’s hope you find some answers. Kind regards,
Your parkies friend in Oz, formerly NZ
LikeLiked by 1 person