Anyone that really knows me, knows that I have had a number of health challenges over the years. With those health challenges, they are largely things that won’t go away. Most of them involve pain. Arthritis, bursitis, hernia, Parkinson’s and probably more as well.
The only way I have managed over the years with the cocktail of illnesses and aches and pains is to not fully attend to the pain. By that, I mean that while I am fully aware that my various conditions cause me pain, but I do not overly focus on that aspect. I can wake up and feel that some part of my body is sore, take some painkillers and then just get on with things. If I was to focus on my pain, my life would become all about pain and that to me is not a way I can live comfortably.
So, when I was at the doctor this week, he asked me what I noticed when I didn’t take my meds on time. Where the pain was and wanted to know how bad it was.
This is something that I have struggled with for years. I am sure that doctors, physios and other professionals that have asked the question have been frustrated that I have been unable to give them a succinct answer to their questions to identify my pain. I am absolutely not trying to be difficult, I just don’t focus on my pain because I just need to get on and do.
So, the doctor has asked me to write a bit of a diary to take to show to the Neurologist. He wants me to note any changes or times when I have pain, where I have the pain and for how long. This is absolutely contrary to everything I am accustomed to. I don’t like to focus on the pain or anything that comes from a deficit model. I usually operate on a positive model in which I acknowledge I have some challenges, but predominantly I focus on what I can do, not what I cannot.
I will try to do this diary for the Neurologist, but I have no illusions that it will be an easy task for me, it is contrary to my nature and my history.
But, I shall try.
My journey with Parkinsons 
Not an easy task..Ladders and E bikes a real no go with PD.An old fashioned bike is your best option.Do you have medical alarms?We started with at home, but graduated to a sophisticated out door one, when I had a devastating fall (I don’t have PD, but have shakes and tremors) HWP could not assist me…We happily walk now..no bikes lol.Take care.Sent from my Galaxy
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Hi. I have read research that says E-bikes are good for people with PD. As long as you are mindful and don’t overuse the throttle and go too fast , it is good for your balance. Also, it has a step through so I don’t have to try to get my leg over a high bar. I’m sure I will know when it feels like it’s getting dangerous.
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remember that even if it’s “not in your nature” – who you were yesterday need not be who you are tomorrow.
Keep going and keep growing; you might surprise yourself!
Linda xx
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Life with this condition is for sure a steep learning curve! I am always growing my knowledge about myself in particular and especially in how I manage my condition.
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You sound like you’re doing a great job – keep it up – here if you ever need a chat. L xx
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