As a follow-up from a previous post about my lack of contact with my Neurologist, I thought I would make a comment and update where I am now.
So, my husband and I went to the Doctor yesterday, so I could talk to him about a number of things which may be Parkies related and also to find out whether he has heard anything about a specialist’s appointment. It appears that he (Neurologist) has sent a letter to my GP to say that I will be seen in approximately four months. Hopefully, it won’t be too difficult to get in to see him.
My GP is really good to deal with and he listened to my concerns and has asked me to do some things which might help. He has asked me to do a diary about whether I have noticed any particular changes in my presentation. He also advised me to take my medications at set times – rather than the rather slack way I have been doing – Looks like I have to sort myself out and do better at regularly at set times and intervals check in with myself as to whether I feel OK when the meds start to wear off.
Doing a diary will be an interesting thing. Hopefully, it won’t be too onerous a task. So, this morning I set up my watch to alert me when I need to take my meds. Hopefully, that will help.
Sometimes, I know it is difficult to pinpoint exactly what changes are taking place and why. As I am getting older – 63 years old – and have arthritis and a few other health delights, perhaps I will go easier on myself. I am sure not everything that is happening to my body is down to Parkies. It is not the default health issue that is all encompassing, other things are bound to have an impact.
So, for the next week I am going to try to take more care when taking medications. Take note of any changes and issues as my meds start to wear off. Generally check in with myself to know when I need more meds and what happens if I don’t have them on time.
Hopefully, at the end of it all I will have had my medications adjusted, so that I can just get on with my life.
My journey with Parkinsons 
Early on when Cheryl was first diagnosed (she was about your age then) we found that it was very important to take her meds – carbadopa/levedopa and entacapone – on a regular consistent schedule. The other aspect of that concerned when she consumed a food with protein relative to when she consumed the meds. Protein interferes with c/l absorption. Over time perhaps 8 – 9 years, her dose was increased and adjusted closer together in time. Up until 2019 her symptoms were mainly physical. In the fall of that year she presented with her cognitive issues. But as we all know everyone is different. Godspeed on your journey.
LikeLike
Hi. Thanks for the comment. I admit I have been very slack when it comes to taking meds. I will be more focussed on taking meds at the right time.
Sue
Sent from Mail for Windows
LikeLike