Here it is the 18th of December 2022 as another year draws to a close. I have to say that this past year has been a good one. On the 21st of December last year we moved into our new home, into a single storey home that is much more sensible for someone navigating their way through a degenerative condition. Of course, it is not only me that is navigating it is also my dear husband as well. We have worked hard in the garden and the house to make the home truly our own. I have been proud to be able to use the waterblaster – such a fun piece of kit – to clean the fences and then the spray gun to paint them all by myself. We have planted flowers and seen them grow and our home really has become a haven for us both.
During this year, I think I have managed my Parkinson’s quite well. It is an ever-present part of my life but is not everything that my life is about. My Blog is something that helps me very much to process my thoughts and feelings and so far, it is doing a good job! There is much to think about and process on this journey and I have always been someone who needs to talk things through or write them down in some way. Whether it’s this Blog, or a poem or some other form of written expression, I need to continue to express how I feel in order to manage. I have always been open about my diagnosis from day 1 and I try very much to educate people that I associate with about the many facets of Parkinson’s. Many just think of Parkinson’s as associated with tremor – and that is a part of it – but other things affected are voice, swallowing, mood – anxiety and depression are common – slowed processing of information and loss of sense of smell. For me, as well there are also emotional effects and I find that I am a much more emotional being than I used to be. There are balance issues to come and lots more delights, but for now, I shall celebrate the fact that thanks to my medications I still function quite well.
I am happy that my words do not fail me as yet. I wrote a poem for our social work lunch the other day about 12 months of COVID and it was well received, so that gave me pleasure that I am still able to cobble a poem together!
As Christmas approaches, I look forward to spending it with my precious family and having my children (and their other halves) and grandchildren all together on Christmas day. My husband having come from rather a small family seems to cope admirably with the chaos but may need to escape from time to time!
As one year closes another opens and in 2023 we are going to the UK to see my husband’s lovely family. So much to look forward to, with 9 weeks in the UK, we certainly plan to make the most of this trip as who knows when Parkinson’s may mean that these things are maybe not the easiest in the future.
Oh well, let’s live in the moment a while and enjoy the present and look forward to all the good things in life we can still enjoy!
This is me wearing my ‘Secret Santa’ present a shower cap!!! How fetching! Merry Christmas everyone. Who cares if we sometimes look a little silly in life. Life’s far too short to be serious all the time!