In my last post I talked about the pain I experienced overnight that kept me awake and basically meant that I had to get up at 5am as I couldn’t sleep with the pain.
I have had a few pain issues at night from time to time but haven’t really thought too much about it previously. But last night was very painful, so I thought it best to make contact with the specialist Nurse who works for my Neurologist. I told her about my pain overnight and she suggested that perhaps it was because I was stiffening up overnight as my medications wore off. I hadn’t thought of that as being a possible reason.
The suggestion is that if I have any spare Sinemet (which I do) that if I am awoken again by pain that I take a Sinemet and see if that alleviates the pain. I asked if I needed to see my specialist Tim Anderson and she stated that she would be seeing me in a month or two and we can discuss this and any other issues then. If it requires any more specialised Parkinson’s input, then I am sure she will arrange for me to see Tim.
The other thing that is happening in my life is that I have a surgery date set for 29/11. I feel that I am more nervous this time around and I think that is perhaps because – although I have had several operations in my life – I have never had one with a Parkies brain before! She advised that the main thing to do is to talk to the surgeon about whether I can take my Parkies medications in the ‘nil by mouth’ period. This is quite important, because if I am unable to take them, then it may hamper my ability to get up and moving as soon as I can to start using my newly repaired bionic limb!
So, I have emailed my surgeon and asked the question about my meds. Hopefully, taking them in the ‘nil by mouth’ period will not be an issue.
I glad I put my hand up and asked for help.
I always feel better after I have summoned up the courage to do so.
My journey with Parkinsons 