I started this Blog approximately January 2021. I was diagnosed with Parkinson’s by Dr Tim Anderson in Christchurch, New Zealand on 15/12/2020. As most of us would be I felt a number of emotions which were quite overwhelming. I had suspected I think for some time, that I had Parkinson’s and so I was not very surprised when he announced that I did indeed have Parkinson’s.
The reason I suppose that I had been thinking I had Parkinson’s was that my parents both had the condition. Perhaps that sort of knowledge is not necessarily a good thing. I knew the signs I saw in my parents and when I started to experience some of the symptoms, I pretty much knew the writing was on the wall and that I had inherited the ‘family curse’.
I had a number of emotions once I heard those words, ‘I have to say that you do have Parkinson’s’. My emotions threatened to swamp me, to overpower me and to derail my life. I knew that I had to do something to help me process and come to terms with what I knew now as fact, that I was a person with Parkinson’s.
I have always been a planner. I have always needed to know what I was doing. To plan not only my life now, but also my future. Parkinson’s threatened to take that away from me. I don’t know what my future holds. My journey may be quite different from my parents. Who knows what treatments and perhaps ‘cures’ may be in all our futures? In the meantime, I had to find a way to manage. To cope with this diagnosis and somewhere to send my thoughts and feelings.
When I look back on my earlier Blogs, I see that I was struggling to come to terms with things. However, the more I wrote, the more I processed through writing this Blog, the more I started to feel better. I was able to get things out of my system, by writing them down and by doing so, felt more in control. The sense of doing something and working through what this whole experience means for me, has been invaluable. It has made me stronger. It has become incredibly important to me to process my thoughts and feelings in this way. I also hope that it helps people to know they are not alone in their experience of this condition. I also hope that others can identify with what I write and that it helps them in some way.
I write this Blog, not just for me, but so that – I hope – I can help others find a way through. I would encourage anyone with this diagnosis – or those who support them – to write a journal, a Blog, a diary or anything else that helps them to think through and process what is happening for them.
It is heartening to see my followers grow as I continue on this journey. Not through some vanity on my part, but in the hope that the more people I reach, the more I may offer a window into my world that they can identify with. Whether I help those who care for someone with Parkinson’s or whether my Blog helps people like me with Parkinson’s, I hope that this Blog continues to help those that follow me.
I would love to hear from some of you about your journey.
This may be a rough road we travel into the future with some pot holes along the way, but sharing our journey with others may make things a little easier.