Oh what a pain Parkies can be!

There are many symptoms of Parkinson’s to contend with along the way, but I think that pain is the main issue for me at times.

I have had a diagnosis of arthritis for many years now and have had four finger joint replacements. At the moment, I am awaiting knee surgery for a full knee replacement. I will admit that I am starting to get quite nervous about the surgery and the recovery process. So, that is a pain I am very much accustomed to.

Last night I awoke in the night with significant pain in my left leg – my Parkies affected side – well, technically speaking it was around 4.50am. I had had trouble sleeping anyway, in all likelihood because I am getting a bit stressed about my impending surgery. However, this pain has nothing to do with my arthritis, but my friend Parkies making itself known. Perhaps it feels it needs to remind me that it is my primary issue?

It is hard to describe the pain that woke me this morning. It was more than cramp and quite different. It felt like a strong shooting pain and I had to take some Panadeine to try to combat it. As I tried to wait for the pain to subside, I looked at the clock and it was about half an hour before I was due to wake up anyway, so decided to get up.

I’m not sure at the moment what if anything I should do about this pain. It seems likely from doing some research this morning – good old Dr Google – that pain of various types is definitely a part of this condition. It can be neurological pain or nerve pain or any one of several types described. I wonder how I would describe the pain to a doctor or specialist even if I was to seek advice. I often struggle with trying to describe pain. Is it a dull pain? Is it a sharp pain? Is it a stabbing pain? Perhaps a shooting pain? I just know it’s a pain that woke me up and necessitated medication before 5am.

It may be this is something that needs monitoring.

I certainly don’t fancy a 5am painful wakeup call every morning!

Published by kiwipommysue

I am a retired Social Worker having retired in May 2024. I had been a Social Worker for over 20 years and for the sake of my health and wellbeing I chose to retire early. I have some literary projects underway and am enjoying the freedom of no longer working. Working on my projects at my own pace and enjoying my new hobby of lawn bowls is a wonderful thing. No regrets and a new kind of busy in retirement is wonderful.

3 thoughts on “Oh what a pain Parkies can be!

  1. 😞I’m sorry that you’re in pain from all its various causes. You are doing a great service by putting this out there because it makes it easier to cope when you know that others are experiencing what I am. I wouldn’t wish PD on my worst enemy. I would be interested to know what your doctor says, if you don’t mind sharing it. Again, thank you for your openness, it really helps others out here in the PD community. 🙏🏻❤️

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    1. Hi Rebecca. Just rang my Parkinson’s Neurologist Nurse, who is very knowledgeable and helpful. She said that the pain might be stiffening overnight because my meds are running low. She has suggested taking a Sinemet in the night if it happens again. She said hopefully this will sort it. I asked if I should see the Neurologist and she said that she will see me in a month or two and we can discuss further if it is still an issue.

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  2. Thanks for your support. It is not great having Parkies pain on top of everything else. Not sure where to go to the doctor or not ior just take pain relief when needed and hope it goes away.

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