Managing Medication

It is coming up to nearly two years since I was diagnosed with this condition. On 15 December 2020, I was to hear the words, ‘you have Parkinson’s’.

From that moment, I was immediately put on medication. The first of these was Ramipex or Pramipexole then later in the first year – from memory – another additional medication was added called Sinemet. As a result of taking these medications, I have had some return of my sense of smell and also my tremors have been pretty much non-existent. So, things have been well under control. That is until recently. I have noticed that around 6pm or thereabouts I have started to get tremors again. Not every night, but often enough. I have also noticed a couple of times at work that I have had the odd tremor. This could, however, be that I have had a few particularly stressful days over the last week or so, and I know that my symptoms – especially tremor – can be worse if I am particularly stressed.

So, this return of the tremor is something that I have pretty much tried to ignore. Hoping, I suppose that it will go away and settle by itself. As I have said, it is not every day, but often enough that I felt I needed to get some advice. So, I contacted my Neurology Nurse. I had a brief discussion with her about what has been happening. She responded by saying that my medications may need adjusting from 3 x daily to 4 x daily.

I had been somewhat reluctant to make contact with her, because in doing so I might have to face the reality that my condition might be progressing. I asked her if this meant that my Parkinson’s was progressing more rapidly, but she didn’t seem to think so. I hope she wasn’t just saying that to reassure me and that it hopefully doesn’t mean things are happening that I should worry about.

She has advised that she will speak to my Neurologist and see what he recommends. I am – despite my best efforts – afraid that just under two years in that I may be progressing. Actually, I’m not sure ‘progressing’ is the right word. That makes it sound like a positive thing, ‘progressing’ and moving forward. Perhaps regressing might be a more apt description?

She is going to ring me back at the end of the week after talking to Dr Anderson, my Neurologist. Hopefully – even if the medications are increased – it doesn’t mean that I need to be concerned about deterioration in my condition and that it is just about getting the balance of medications right to manage symptoms.

Fingers crossed.

Photo by Kevin Malik on

Published by kiwipommysue

I work in health and have been with the same supportive team for over 7 years. They are all aware of my diagnosis and this helps tremendously especially while I get used to the idea of my diagnosis. My parents both had Parkinsons, so I guess my odds were higher than most.

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