Recently diagnosed with Parkinsons' this Blog is about my personal experience with getting a diagnosis, dealing with the diagnosis and what has helped me. It is hoped that by sharing my experiences, I can encourage others to take the step to seek a diagnosis and to find a way to 'live well' with a path we did not choose, but that we must walk. I call it "Parkies" because it makes it sound a little less serious and maybe even a bit "friendly" for if I cannot avoid the association I can perhaps find a way to walk with it.
I have always been a hugger for those I am close to, like my husband, my children and my grandchildren. I may have become even more so with the advent of Parkinson’s in my life. I wonder if those of you listening to this podcast have noticed an increased tendency to hug?
I hope you enjoy listening to this.
I am a retired Social Worker having retired in May 2024. I had been a Social Worker for over 20 years and for the sake of my health and wellbeing I chose to retire early. I have some literary projects underway and am enjoying the freedom of no longer working. Working on my projects at my own pace and enjoying my new hobby of lawn bowls is a wonderful thing. No regrets and a new kind of busy in retirement is wonderful. View more posts
My journey with Parkinsons
Powerful thoughts, Sue. I am not a hugger or I should say that I don’t start it. But all of the women in my life (there are many) are huggers. My sons like me are not either but that seems to be changing as we all get older. You are right – there is a whole range of emotion conveyed by that small gesture. Hugger Bugger! … I like it.
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I think you are just a really nice person, you like to engage with people and hugging is part of this…As an aside, I read your story about your journey with the Surgical waiting list.HWP had been waiting for skin cancer surgery, (not just a small lesion, but a large one that needed a vein and skin grafting on his head) waited months.Saw his Physician who manages his PD and he made “some enquries” and 5 days later we have op time and date. Op had been contracted out from Hospital to a Private facility. Op time is 5.25pm. Two hours in theatre and recovery (being done under sedation not GA)Yippee you may say, but going to theatre for a fairly major procedure at 5.25pm when you have PD and PSP, not so good. Booking clerk had a “take it or leave it” approach.Showed no interest in husband’s other medical issues….op completed, but that’s another story.Just wanting to say I don’t think the booking clerks are medically trained. Try and get a name and contact the same person each time.Have you ever had a Trodat scan? re your PD?Waiting for one of these also for husband.He’s 9th on the list, three months away lol.Husband has read some of your poems, he has watched some podcasts (you may be able to see) he’s enjoyed them..thank you.Have the best day you can.Sent from my Galaxy
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Thank you for your kind words as always. Right back at you. You are always so kind and generous in your comments on my blogs and podcasts. I hope you continue to enjoy them. Hopefully your husband’s surgery goes well. I’m glad he continues to like my poems and podcasts. Thank you for being one of my most loyal followers.
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