Feeling lucky to have Parkinson’s
So today I was reminded to count my blessings. , The title of this podcast is Feeling Lucky to Have Parkinson’s, and that is, no doubt going to seem like a weird thing to, to say to actually celebrate having Parkinson’s. But I’ll tell you what happened today. So my husband and I decided…
Keep readingWho am I? What am I?
Throughout life, we grow and we change and I know for me that I have had several identities or ways that I define myself. The way we define ourselves can be complex and multi-facetted. When I was growing up I was the only daughter in my family with three older brothers. I was always the…
Keep readingPresents vs Presence
So another year is over and a new year begins. Christmas is the season where we gather together with friends and loved ones, if we are lucky enough to have them, and often gifts are exchanged. Receiving a present is always fun, but sometimes we would wish for more of those we love to be…
Keep reading“Please help desk person” A poem
I haven’t written a new poem for a while, but tonight I was inspired to write this one about trying to get a help desk person to help me. I obviously use a computer regularly and am reasonably good at understanding most things, but tonight I wasn’t able to work things out for myself and…
Keep readingSeeking the positive…
A diagnosis of Parkinson’s may be difficult to put in a positive light, but it is something that I try to do as much as possible. The diagnosis has spurred me on to make the most of life and not to just cruise along doing the same old things. I have made a concerted effort…
Keep readingChanging attitudes and priorities…
I have certainly lived a variety of wide and vivid lives over the years. I have morphed into various versions of myself, sometimes knowingly and willingly, sometimes moulded and controlled versions. The 18-20 year old young woman who married at 18 and had their first child at 20 started out – even though I had…
Keep readingChristmas just the two of us… and Christmas stress
Today is Boxing Day and we have come home from our night away and an amazing Christmas Day where the food was incredible. Best of all, no prep, no dishes, no tidying up, no pressure or stress. Christmas Eve, I commented several times that this was the most relaxed I have been my entire life…
Keep readingIs Christmas still the same or different?
Here we are on 22/12/25 in the countdown to Christmas. Three days to go for children and grandchildren to be excited for a visit from Santa. Three days to prepare all the things that need to be prepared for things – hopefully – to go smoothly on the day. This year though, for us it…
Keep readingForgetting….
When I open up to people about my Parkinson’s – which I often do early on – one of the first things they tend to say is that I don’t look like someone with Parkinson’s. They also say that they don’t notice any issues with standing, walking or tremors. All of the above is true.…
Keep readingMoving on – A village or facility when and why?
I am a planner from way back. I like to know what is happening and when and although I don’t necessarily feel I need to work to a strict schedule, I do like to know I am in control. That makes me sound a bit of a control freak, but it just means that I…
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My journey with Parkinsons 